#postcovid

I have questions to people who have knowledge about Burnout, PAIS (post-acute infection syndromes, like Post/Long-Covid, ME/CFS, etc…), orthostatic hypotension, blood pressure management, fitness, pacing, etc.

This will be a long post and you don’t have to read all of it. Just look for the paragraph with the headline “questions” in the first reply. I’m mostly writing so much to get my own thoughts in order.

NOTICE

I’m asking this here in the Fediverse because this is the best place to reach actual people who know stuff. Before the ecocide slop boom I’d have started with internet research, but that’s no real option anymore. If an account answers me that seems like AI it will be blocked. If you answer me with what you just found on random internet sites, you will be blocked. Everybody else: Thank you! Btw you don’t have to be a formal expert on any of the subject matters. Anecdotal evidence by people affected or relatives is highly valuable too.

BACKGROUND

I’m prone to both burnout and PAIS (undiagnosed, because the health system is inadequate) but haven’t yet had both of them at the same time. This might be different now. My burnout is definitely back and I’m having an infection that feels a lot like it will turn into a PAIS. I’ve had a PAIS two times both starting in MAy of 2024 and 2025 and lasting for 3 months each. So this would be the right time to get it again. Since the last PAIS I’ve had two infections though that felt like the start of PAIS, but I probably stopped them with lots of medication, supplements and other methods. My last sick-leave was due to my first burnout for 6 weeks (obviously not long enough). I’m on sick-leave again since Wednesday because the burnout is back - the infection broke out one day later, but probably already made my body weaker before, playing a role in the burnout-relapse.

MY SYMPTOMS

For burnout my main symptoms are: tinnitus, tensions in the ear, jaw & neck area, headaches, bad sleep, fatigue, susceptibility to stress, low psychic resilience. For the PAIS its fatigue, bad sleep, brain fog, bad performance in all systems (fitness, cognition, social, etc..), malaise, some symptoms of a cold or allergy (constant tingle in my nose, running nose, sometimes coughing and sneezing, …) and bad memory that lasts longer than everything else (years instead of months).

SPECIAL SYMPTOM: ORTHOSTATIC HYPOTENSION

I’ve had bad orthostatic hypotension as a child with regular syncopations. It has gotten better (rarer) and I’ve learned how to deal with it, at least a bit. I do still have it whenever I have an illness that makes me bedridden, like infections and depressions. There are basically 4 levels: 1 (usually without positional change): I feel that something is wrong with my orthostasis. 2 (usually with some positional change, like from lying to sitting): I feel dizzy and weak, like my brain is not supplied with blood as it should be, but no signs of unconsciousness. 3 (usually when changing from lying to standing): I feel my conciseness fading, I get tunnel vision, my legs let up and I have to hold tight to make sure I don’t fall. I get the feeling of a slight dissociation, but I’m still there enough to control it and it slowly fades away giving me a warm comfortable feeling when the blood flows back to everywhere where it’s needed.

1. (sometimes combined with 3 and me not controlling it well, sometimes immediately after standing up too quick after lying for a while): I loose consciousness and fall down, sometimes banging my head badly. I haven’t had this level since my teenage years and my consciousness always came back immediately when I’m on the ground. Now I’ve learned that orthostatic hypotension is both a symptom and a risk factor for PAIS and since I’ve had it forever I think it might be a good idea to learn to manage it better as to not get PAIS again or at least less frequent.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

📺 https://peer.adalta.social/w/wPdxCBb5HxKApFCfvRMes3 🔗 🇩🇪🇺🇸🇫🇷 🔗 ℹ️

Une dysrégulation persistante de l’axe intestin-immunité constitue un mécanisme pathogénique central dans le syndrome post-COVID de longue durée.

#longcovid #postcovid #pasc #pwlc #postcovid19