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tomkindlon
Tom Kindlon @tomkindlon@disabled.social · Jul 25, 2026
Boosted by Trending Bot @trending@homestead.social
"Glandular fever*’s not just the ‘kissing disease’...The risk of chronic fatigue [syndrome] means the ‘kissing disease’ should not be downplayed. Experts say there can be long-term consequences" https://www.theaustralian.com.au/health/medical/glandular-fevers-not-just-the-kissing-disease-as-kaylee-mckeown-found-out/news-story/c97eaf0b87503ffc9db4a4abe0aeee6d?amp Archive https://archive.is/4Tf0p *aka Mono #MEcfs #PwME #CFS #ME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social
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tomkindlon
Tom Kindlon @tomkindlon@disabled.social · Jul 22, 2026
Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024) https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full #MEcfs #CFS #PwME #SevereME #SevereMECFS #SevereCFS #VerySevereME @mecfs@fedigroups.social
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Marcus 🔻 @mendaciumpugnator.bsky.social@bsky.brid.gy · Jul 14, 2026
Exciting new developments in research. Directly measuring ATP (and thus, energy) levels in the brain through MRI scans. #me #cfs #mecfs #longcovid #PAIS www.youtube.com/watch?v=TV9h... 086 - We can now measure the b...
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tomkindlon
Tom Kindlon @tomkindlon@disabled.social · Jul 05, 2026
Biomarkers of post-acute infection syndrome: a systematic literature review https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2026.1741761/full "Overall, the total risk of bias was frequently classified as high, whereas only a limited number of studies demonstrated a low or moderate overall risk of bias” #LongCovid #mecfs #cfs @mecfs@fedigroups.social @longcovid@fedigroups.social
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tomkindlon
Tom Kindlon @tomkindlon@disabled.social · Jun 30, 2026
“The Best ME/CFS and Long COVID Treatment Guides in the U.S.: A Round-Up for Patients, Caregivers, and Clinicians” (8-minute read) https://www.caregiverwisdom.net/post/best-me-cfs-and-long-covid-treatment-guides-for-patients-caregivers-and-clinicians #LongCovid #MEcfs #pwme #cfs @longcovid@fedigroups.social @mecfs@fedigroups.social
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mxfraud
MxFraud @mxfraud@tabletop.social · Jun 25, 2026
Boosted by Furbland's Very Cool Account™ @GroupNebula563@mastodon.social
Fediverse: what are good resources to send to people that just got Long Covid / ME / CFS ? They don't even know it is a thing that exists. I would prefer something that does centers "ME/CFS" as opposed to "Long Covid", because in the context of the person that needs it, they might get less support mentionning covid. I know I'm asking the people with no spoon to do some work, but I also know that you'll have the better things than google/ddg. Ziness, books, websites, videos, any medium. Boosts are very welcome :boost_ok: Hashtag salad: #LongCovid #MECFS #ME #CFS
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tomkindlon
Tom Kindlon @tomkindlon@disabled.social · Jun 09, 2026
Boosted by Trending Bot @trending@homestead.social
Researchers including Dr Bo Bertilson, funded by ME Research UK alongside the OMF and the Amar Foundation, have identified that protein signatures in cerebrospinal fluid differ between groups of people with ME/CFS. Read more about the study here: https://bit.ly/4vxGNYS #mecfs #pwme #cfs @mecfs@fedigroups.social
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tomkindlon
Tom Kindlon @tomkindlon@disabled.social · Feb 02, 2026
Living with #MECFS All of these things can be out of reach, or close to, for some #MyalgicEncephalomyelitis patients. Some will be able to attain some of these things at certain points during their illness. From Lu Baker Art https://instagram.com/lubakerart (repeat) #CFS #PwME #ChronicFatigueSyndrome @mecfs@fedigroups.social
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