@tomkindlon@disabled.social
·
Jun 09, 2026
Tom Kindlon
@tomkindlon@disabled.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022). Irish ME/CFS Association* trustee 29 years. 26 publications in peer-reviewed journals. MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie
disabled.social
Researchers including Dr Bo Bertilson, funded by ME Research UK alongside the OMF and the Amar Foundation, have identified that protein signatures in cerebrospinal fluid differ between groups of people with ME/CFS.
Read more about the study here: https://bit.ly/4vxGNYS
#mecfs #pwme #cfs @mecfs@fedigroups.social
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📺 https://peer.adalta.social/w/kqRH8K2ZTgjShFoaNHUR1g 🔗 🇩🇪🇺🇸🇫🇷 🔗 ℹ️
La publication d’un plan de soins spécialisé marque un tournant dans la prise en charge de ces pathologies invalidantes.
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@tomkindlon@disabled.social
·
Feb 02, 2026
Tom Kindlon
@tomkindlon@disabled.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022). Irish ME/CFS Association* trustee 29 years. 26 publications in peer-reviewed journals. MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie
disabled.social
Living with #MECFS
All of these things can be out of reach, or close to, for some #MyalgicEncephalomyelitis patients. Some will be able to attain some of these things at certain points during their illness.
From Lu Baker Art https://instagram.com/lubakerart
(repeat)
#CFS #PwME #ChronicFatigueSyndrome @mecfs@fedigroups.social
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