@tomkindlon@disabled.social
·
Jun 09, 2026
Tom Kindlon
@tomkindlon@disabled.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022). Irish ME/CFS Association* trustee 29 years. 26 publications in peer-reviewed journals. MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie
disabled.social
I like many other people thought this blog post was very good
"Why I Can’t Just Meet You for Dinner"
https://substack.com/home/post/p-178293036
Screenshot from AMMES May 2026 Newsletter
#MEcfs @longcovid@fedigroups.social
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #PEM #PostExertionalMalaise
#PwME #ME #MyalgicE
@mecfs@fedigroups.social
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@tomkindlon@disabled.social
·
Jun 09, 2026
Tom Kindlon
@tomkindlon@disabled.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022). Irish ME/CFS Association* trustee 29 years. 26 publications in peer-reviewed journals. MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie
disabled.social
Researchers including Dr Bo Bertilson, funded by ME Research UK alongside the OMF and the Amar Foundation, have identified that protein signatures in cerebrospinal fluid differ between groups of people with ME/CFS.
Read more about the study here: https://bit.ly/4vxGNYS
#mecfs #pwme #cfs @mecfs@fedigroups.social
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@AncTreat5358@lgbtqia.space
·
May 08, 2026
Alex 
@AncTreat5358@lgbtqia.space
Agender queer vegan minimalist atheist AuDHDer living in perfect harmony with a sweet kitty. Health: Sjogren's; ME/CFS; CRPS; Mild Cognitive Impairment; Auditory Processing Disorder Interests: photography, fine art, YouTube channels, Apple ecosystem, invisible illnesses, etymology, global awareness, plants, WFPB diet, LGBTQ issues, trans rights, small business (especially women- & minority-owned), and pinball. Oh, and most importantly, I celebrate cats! Posts auto-deleted after one month.
lgbtqia.space
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@IrishMECFSAssociation@mastodon.ie
·
Apr 30, 2026
Irish ME/CFS Association
@IrishMECFSAssociation@mastodon.ie
The Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association – for Information, Support & Research. NB: Posts should not be considered advice. Registered Charity Number: 20100254 CHY 22039 #MEcfs #PwME Currently also sharing some items relating to #LongCovid given various research studies have found a significant percentage satisfy ME/CFS criteria
mastodon.ie
RE: https://mastodon.ie/@IrishMECFSAssociation/116431267742450459
One week to go. Apart from the people who responded to the FB event (one going, 23 interested), two other people have said they hope to attend.
#MEcfs #PwME @mecfs@fedigroups.social
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📺 https://peer.adalta.social/w/kqRH8K2ZTgjShFoaNHUR1g 🔗 🇩🇪🇺🇸🇫🇷 🔗 ℹ️
La publication d’un plan de soins spécialisé marque un tournant dans la prise en charge de ces pathologies invalidantes.
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@tomkindlon@disabled.social
·
Feb 02, 2026
Tom Kindlon
@tomkindlon@disabled.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022). Irish ME/CFS Association* trustee 29 years. 26 publications in peer-reviewed journals. MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie
disabled.social
Living with #MECFS
All of these things can be out of reach, or close to, for some #MyalgicEncephalomyelitis patients. Some will be able to attain some of these things at certain points during their illness.
From Lu Baker Art https://instagram.com/lubakerart
(repeat)
#CFS #PwME #ChronicFatigueSyndrome @mecfs@fedigroups.social
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