#Post Covid, #MECFS: 3 Gerichtliche Gutachter auf Schadensersatz verklagt (Erwerbsminderungsrente)
https://www.anwalt.de/rechtstipps/post-covid-me-cfs-3-gerichtliche-gutachter-auf-schadensersatz-verklagt-erwerbsminderungsrente-278811.html
Am Samstag demonstrierten Betroffene von Long Covid, ME/CFS und Post-Vac in Hamburg für eine bessere medizinische Versorgung. Sie demonstrieren im Liegen, weil Erkrankungen wie Long Covid und ME/CFS ihren Alltag stark beeinträchtigen können.
Atemnot, Herzrasen und Müdigkeit sind nur einige Symptome, unter denen Menschen mit einem postakutem Infektionssyndrom leiden. Eine Heilung ist bisher nicht in Sicht, obwohl seit Jahren daran geforscht wird.
https://www.ndr.de/nachrichten/hamburg/long-covid-und-me-cfs-betroffene-demonstrieren-in-hamburg,demonstration-226.html
#Demo #MECFS #Hamburg
Ahimsa
@ahimsa_pdx@disabled.social
Vegetarian, book lover📚 Living with ME/CFS since 1990 ♿️ She/Her ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome Please use #AltText on images/GIFs/videos ❤️ Avatar photo: Old photo of my cat, tabby with white chest & paws. Banner photo: A grove of leafy green trees in a park. My posts, no boosts = https://justmytoots.com/@ahimsa_pdx@disabled.social?public_only=true #MEcfs #PwME
disabled.social
From #MEAction for Severe ME Day (Aug. 8)
"Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026"
https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026
"#MEAction is proud to share the Severe ME Artists Project 2026!
... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community"
1/3
@mecfs@fedigroups.social
#MEcfs #SevereME #SevereMEcfs #PwME #Art #Disability
Kehrwoche 🔴 ⚪
@Kehrwoche@sueden.social
männlich, Schwabe, verheiratet, ein Kind, gepeinigter #VfB Fan, eigentlich zu alt für den Scheiß, schaue zum Ausgleich von all dem Übel gerne gute Serien und Filme Titelbild: Sonnenuntergang am Strand von Dornumersiel mit meinen zwei Liebsten. Profilbild: Herr von Ribbeck beim Birnen pflücken.
sueden.social
Immer wenn meine Frau zu ihrer Schwester fährt (Pflege und so), erinnere ich sie daran, dass ihre Schwester, kurz bevor sie krank wurde, eine Beteiligung an einem Strafzettel von 25 € von ihr wollte, als sie einen gemeinsamen Ausflug unternommen haben.
Ich bin nicht nachtragend oder so, aber die Situation ist unerträglich und vermutlich ist das mein Galgenhumor.
#SzenenEinerEhe
#MECFS
For years, my voice just quits on me when I'm worn out. My one regret in life is not asking the neurophsiotherapist what tf that is all about when she asked me (in the context of my illness) "Does your voice give out sometimes for hours or days?" I just said "yeh-", stunned that I didn't have to even begin to describe my most unlikely symptom
Anyway it's only Tuesday & I'm so tired I can't talk
#MECFS #ChronicIllness #Ataxia
It’s #WorldEmbroideryDay ! I make #SciArt #embroidery of #anatomy and #symptomatology. After I got sick with #MECFS in 2015 I started stitching as a more restorative creative practice than my previous music and theatre work.
Vraagje voor mensen die ook #longcovid #mecfs met PEM hebben: doe je aan sport/lichaamsbeweging en zoja wat dan en hoe pak je dat aan?
Edit: ik wandel zelf bijna dagelijks (en probeer daarbij hartslag niet te hoog te laten komen) enoverweeg om wat krachttraining te gaan doen (te beginnen met gewichtjes om armen te trainen)
Rob Wüst
@robwust@bird.makeup
Associate Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease This account is a replica from Twitter. Its author can't see your replies. If you find this service useful, please consider supporting us via our Patreon.
bird.makeup
1/10 I am incredibly proud to share our latest study, published today in @naturecomms@bird.makeup, a follow-up to our 2024 paper on skeletal muscle abnormalities in long COVID. Open access:
https://www.nature.com/articles/s41467-026-75725-y
#LongCOVID #MECFS
Tom Kindlon
@tomkindlon@disabled.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022). Irish ME/CFS Association* trustee 29 years. 26 publications in peer-reviewed journals. MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie
disabled.social
Rob Wüst, corresponding author of the new paper: "Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest"
https://www.nature.com/articles/s41467-026-75725-y
Link to his full post
https://www.linkedin.com/posts/rob-w%C3%BCst-74b13431_skeletal-muscle-properties-in-long-covid-share-7487754143374184449-tcqs/
#MEcfs #LongCovid @mecfs@fedigroups.social @longcovid@fedigroups.social
Tom Kindlon
@tomkindlon@disabled.social
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severely affected 31 years. Health has deteriorated post Covid (March 2022). Irish ME/CFS Association* trustee 29 years. 26 publications in peer-reviewed journals. MEpedia entry which has links to my social media accounts (among other things): https://me-pedia.org/wiki/Tom_Kindlon #ChronicFatigueSyndrome #MECFS #PwME #fedi22 *IrishMECFSAssociation@mastodon.ie
disabled.social
Great to have this research with such a useful control group:
Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest
https://www.nature.com/articles/s41467-026-75725-y
#MEcfs #LongCovid @mecfs@fedigroups.social @longcovid@fedigroups.social
David Davies-Payne
@ddp@fediscience.org
Paediatric Radiologist, Aotearoa New Zealand 75% #LongCOVID #MECFS 20% #MacDev #iOSdev #SwiftLang 5% #Radiology Born at 322.0 ppm
fediscience.org
"Patients with long COVID and ME/CFS displayed higher proportions of type IIa/IIx fibers, and signs of intrinsic mitochondrial dysfunction, observations that were not seen following bed rest."
"As mitochondrial and endothelial dysfunction appear prominent in both long COVID and ME/CFS, with clear implications on oxygen extraction, future studies should aim to investigate the viability of improving patient mitochondrial and/or endothelial health to reduce patient burden."
#MECFS #LongCovid
https://www.nature.com/articles/s41467-026-75725-y
Science4ME News Bot
@s4me_news@mas.to
Posting weekly news summaries from Science4ME. "Where science and the ME/CFS community meet."
mas.to
Science for ME: News in Brief
20 - 26 Jul 2026
🧵 of highlighted #MECFS and #LongCovid research papers discussed in the last week on the Science for ME forum.
@mecfs@fedigroups.social
https://s4me.info/threads/news-in-brief-july-2026.51240/post-709358
Science4ME News Bot
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Persistent neuromuscular dysfunction in long COVID: A quantitative and single fiber EMG follow-up study — Khan et al
"Although SFEMG abnormalities persisted in the majority of patients, 40% showed normalization of objective neurophysiological parameters despite unchanged subjective fatigue symptoms, highlighting the discrepancy between electrophysiological recovery and patient-reported outcomes."
#MECFS
https://www.sciencedirect.com/science/article/pii/S0987705326000511
Science4ME News Bot
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Plasma Cytokine and Caspase-1p20 Profiles in Pre-Pandemic and Long COVID-Associated Postural Orthostatic Tachycardia Syndrome — Gunning et al
The notable performance of IL-18 is supported by concurrent elevations of the active Capase-1 p20 subunit and IL-1β." "Together, this triad of circulating biomarkers are suggestive of activation of canonical inflammasome pathways, most notably the NLRP3 inflammasome."
#MECFS
https://www.mdpi.com/2227-9059/14/7/1605
Science4ME News Bot
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Small extracellular vesicles proteome reveals persistent inflammatory and coagulopathic dysregulation in long-COVID — Chandran et al
"this study highlights a potential role of SEVs and their molecular cargo in the inflammatory, thrombotic, coagulopathic, and endothelial abnormalities characteristic of PASC."
#MECFS
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2026.1805159/full
Science4ME News Bot
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Understanding neuroinflammation in post-COVID-19 syndrome: biological mechanisms, diagnostic biomarkers, and therapeutic prospects — Martins et al
"we highlight converging neuroimaging biomarkers derived from PET and MRI studies."
#MECFS
https://www.nature.com/articles/s41398-026-04286-x
Science4ME News Bot
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Cerebral gray matter volumes in long-term post-COVID patients are associated with peripheral kynurenine pathway metabolites and the severity of depressive symptoms — Matits et al
"Although no significant group-level GMV differences were observed, a higher peripheral kynurenic acid/ quinolinic acid ratio was associated with a higher GMV in the right parietal lobe and right cingulate gyrus in patients with PCC"
#MECFS
https://www.sciencedirect.com/science/article/abs/pii/S0889159126006665
Science4ME News Bot
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An exploratory exome-wide machine learning analysis identifies candidate host gene signatures associated with Long COVID in a large admixed Brazilian cohort — Zetum et al
"this study provides a hypothesis-generating integrative framework for investigating host genetic contributions to LC in an underrepresented admixed population."
#MECFS
https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2026.1837186/full
Science4ME News Bot
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Altered TRPM3-Dependent Cytosolic and Mitochondrial Calcium Influx in Natural Killer Cells of Post-COVID-19 Condition Patients — Magawa et al
"this study provided new evidence that demonstrate that TRPM3 ion channel dysfunction has a significant impact on cytoplasmic and Ca2+ mobilization in the mitochondria in PCC."
#MECFS
https://onlinelibrary.wiley.com/doi/10.1002/eji.70240