#eds

coupl'a questions from a friend for any trans guys (etc) with EDS (or maybe other connective tissue issues) - is T preventing pelvic connective tissue problems? any info on how it is going on T for trans guys (etc) with COL31A differences? #trans #transmasc #transman #ftm #eds

Almost exactly 3 months since I got these shoes and I'm still getting blisters/pain (in the same two places on each foot) any time I walk longer than 2km (which is pretty regular), no calluses or anything in sight. My feet are still soft and smooth as a baby's bottom.. Similarly with my fretting fingers, no trace of calluses at all, and I'm close to 3 months of regular practice there too. I'm chalking both of these up as more potential symptoms of #eds 🤷🏻‍♀️

DuckDuckGo is being unsurprisingly unhelpful with this because all results are influencers or brace brands (most of whom don't even specialize in hypermobility or EDS):

• Can anyone with hEDS or similar show me a shoulder brace that lets them use their arms but protects their shoulders from subluxation? *

I only need pictures, can't afford to buy one myself so I'm gonna try to DIY 😅 additional information also appreciated, I'll be researching anatomy for it too

#hEDS #EDS #hypermobile

My disability impacts my proprioception… meaning I’m constantly bumping & banging into things. A few weeks ago I developed a nasty foot infection, and two days ago I sliced open my hand cutting the gauze FOR the foot infection. Chronic illness is no joke. If I owe you a reply or an email, this is why I’m late. My gauze paw is slowing me down! PS… when dealing with chronic illness it’s important to have a well stocked first aid kit! Mine is a first aid bin… it’s one of those large underbed storage containers. Having instant access to emergency supplies is a necessary accommodation to improve quality of life. #chronicillness #disability #eds #ehlersdanlossyndrome

Please share, if you can. I'm so deeply sorry & embarrassed. I'm desperate and not doing well without my medications. 😖 #NEISvoid #hEDS #chronicpain #marfansyndrome #EDS #MECFS #POTS #MCAS #AuDHD #actuallyautistic #ADHD #disabled #longcovid #mutualaid #spooniechat #chronicillness #crowdfund #emergencycrowdfund RE: https://plasmatrap.com/notes/aoctlai1vp