#heds

DuckDuckGo is being unsurprisingly unhelpful with this because all results are influencers or brace brands (most of whom don't even specialize in hypermobility or EDS):

• Can anyone with hEDS or similar show me a shoulder brace that lets them use their arms but protects their shoulders from subluxation? *

I only need pictures, can't afford to buy one myself so I'm gonna try to DIY 😅 additional information also appreciated, I'll be researching anatomy for it too

#hEDS #EDS #hypermobile

Please share, if you can. I'm so deeply sorry & embarrassed. I'm desperate and not doing well without my medications. 😖 #NEISvoid #hEDS #chronicpain #marfansyndrome #EDS #MECFS #POTS #MCAS #AuDHD #actuallyautistic #ADHD #disabled #longcovid #mutualaid #spooniechat #chronicillness #crowdfund #emergencycrowdfund RE: https://plasmatrap.com/notes/aoctlai1vp

🔥 psa for anyone taking quercetin on a regular basis 🔥 this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked! (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary) i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay take care people and good luck #MCAS #POTS #hEDS #LongCovid #allergies