#fibromyalgia

Scientific Frontline @sflorg@mastodon.social · Jul 28, 2026

Fibromyalgia is a chronic disorder characterized by widespread pain, fatigue, and cognitive difficulties, which a landmark study has now definitively linked to specific biological and genetic variations. Researchers identified 26 distinct genomic regions associated with the condition, proving that it stems from neurobiological differences rather than purely psychological origins. #GenomicEpidemiology #MolecularGenetics #Neuroscience #Fibromyalgia #sflorg https://www.sflorg.com/2026/07/geno07282601.html

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Arend (they/them) @arendleejessurun@musicians.today · Jul 11, 2026

ICYMI, you can still get my latest album for free for #DisabilityPrideMonth. This album was mostly recorded in the summer of 2025, when not on bed-rest for #longCOVID, #MECFS, #fibromyalgia. It's a response to the rising christian nationalism/dominionism in the US and the world. I was a worship leader for many years. I left that world for how it treated me and other queer, disabled folks. If you grew up in the church and have been burned, this one's for you. ❤️‍🩹 https://arendleejessurun.bandcamp.com/album/the-tower-of-babel-falls

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Ace of Cosmic Space🏳️‍⚧️🏳️‍ @aceofcosmicspace@lgbtqia.space · Jul 11, 2026

Baby Yoda neck pillow(with a hood), and what a game changer for my fibromyalgia! I actually managed some half decent sleep😁 Hooray! #fibromyalgia #pillow #babyyodadada #babyyoda #grogu

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FJ Brodie @FibroJedi@gamepad.club · Jul 10, 2026

The #Finch app said I should "doodle a quick self-portrait" today. I don't like looking at my face, and I suck at drawing human faces. So I did... Depictions instead. #depression #indecision #Fibromyalgia #ChronicPain #doodle #sketch

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Ace's funhouse(new)🏳️‍🏳️‍🌈 @acesfunhouse@kinkycats.org · Jul 03, 2026

PLEASE BOOST. It's Disability Pride Month. If you'd like to help me(a disabled trans man) afford groceries, meds and other basics this month, it would be much appreciated. My goal is $200. #disabilitypridemonth #disability #disabled #cptsd #fibromyalgia #mentalhealth #boost4reach #boost4help #mutualaid #boostplease #lgbtqiaplus https://ko-fi.com/aceofcosmicspace

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Valerie Roney @vlrny@disabled.social · Jul 02, 2026

Hey spoonie hivemind! Are there side effects/onboarding issues I should watch out for starting low dose naltrexone? Any other advice/observations/tips also welcome. I assumed I could just start it in the background and mostly ignore, wait for slow improvements. But wonder if part of my symptom buffet has shifted (now getting mild headaches, etc), it's so hard to tell with *waves at everything* #lowDoseNaltrexone #fibromyalgia #MEcfs #longCovid #spoonies

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your auntifa liza 🇵🇷 🦛 🦦 @blogdiva@mastodon.social · Jul 01, 2026

IN OTHER LIFE AFTER #FuckCancer NEWS am in massive pain on my #mastectomy side and am literally exhausted from the pain. i already had to deal with #fibromyalgia but when the #lymphedema decides to hit hard, it takes me out. so if you are also suffering from chronic pain, loudly or in silence, i see you. my doctors have been amazing but i wish the whole USA health care culture took pain seriously. there has to be a better way than leaving these side effects to chance.

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Bowie @BowieSpace@mastodon.social · Apr 30, 2026

Fibromyalgia is such a pain in the ass. #fibromyalgia

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Bowie @BowieSpace@mastodon.social · Apr 18, 2026

After 2 years working to be able to walk properly again and getting myself off double forearm crutches, and then 4 years being essentially bedridden except for absolute minimal basics of daily life(and some days not even that), yesterday I moved the tv back into the lounge room. Finally feeling like I'm at the stage where I can sit and watch tv without expending too much energy, and still have ability to do other things. It's a big deal. Please clap. #fibromyalgia #chronicpain #chronicfatigue

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careclinic @careclinic@mastodon.social · Mar 09, 2026

Replying to @FibroJedi__dup_32774@gamepad.club

@FibroJedi@gamepad.club the waiting and uncertainty between appointments is so exhausting on top of everything else. hoping the blood tests give you some useful answers and that the med tweak actually makes a difference this time. sending strength your way 💪 #fibromyalgia

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FJ Brodie @FibroJedi@gamepad.club · Apr 14, 2026

Another day or so of disconnect, due to energy lows and #Fibromyalgia pain high. I managed to do a walk, and start reading the second Dragon book with NJ. Oh, and I'm still alive. I hate how much #chronicpain has affected either what I can do, or taken the desire to do things away, or sapped my energy so I'm just not up to doing them. It's beginning to feel to restricting now. I have to exercise for health and weight control, so can't channel that energy elsewhere either...

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FJ Brodie @FibroJedi__dup_32774@gamepad.club · Mar 05, 2026

Just as I wasn't on here yesterday, a quick health update. I had my phone consultation with the doctor today. We have an easy first "tweak" of one of my pain meds that almost doubles it. That's our first experiment. BTW, that means getting through 250 tablets a month on /one/ of my meds. The second thing is I will have blood tests next week, to investigate whether there's a cause for my daily energy crashes, when not a lot has changed in life. I hate #fibromyalgia & all its evil little pals.

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FJ Brodie @FibroJedi__dup_32774@gamepad.club · Feb 25, 2026

I got my dates mixed up. My medication review is next Wednesday, not tomorrow. Just have to survive another week of pointless high pain and no answers, and hope the doctors can advise medication changes. The pain is still pointless, but hopefully the plan can change. I've lost 1 stone of weight and doubled my physical activity since my last review, so they can't blame it on those two things. #fibromyalgia #fibro #chronicpain

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FJ Brodie @FibroJedi__dup_32774@gamepad.club · Feb 23, 2026

Hey all, I'm in a really rough "place" with my #Fibromyalgia right now. Effectively my meds aren't...effective. They take a bit of the edge off the pain, but it's not enough. I've felt incapable for most of the weekend. I have a phone call with the doc on Wednesday to discuss my meds. I can't go on in this level of pain forever. #ChronicPain #FedUp

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Kata_Pultti @Kata_Pultti__dup_32733@mementomori.social · Feb 21, 2026

oon valvonut kankkualaselkäkivussa.

kävin päivällä kitkalla (1,5 km) kaupassa ja sit illalla kävelin (3km)... kaikki ois luultavasti mänt hyvin jossen ois kävelly LIIAN REIPPAASTI mäkiä. MUTKU tuntui hyvältä kävellä reippaasti kerrankin, yleensä ei jaksa. 🤪 vasen kankku on kosketusarka. tekis mieli hieroa sitä ja panna pallo perseen alle ja mutjuttaa muttei voi. vasen puoli on mulla huonompi aina. johtunee siitä, et jalka lyhyempi ku pitäs tai mistä minä tiiän. sen tiiän, et #fibromyalgia on perseestä ja perseessä.

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Nettlephagus @Nettlephagus__dup_32842@mementomori.social · Jan 30, 2026

Oodi fibrolle Saatana Kun on kroppa paskana Toisinaan Tahtois vaan olla ja nauttia. Kipu ja väsymys On jatkuva elämys Miten niistä taukoa On se suuri kysymys Ei auta liikunta Ei itseä riuhtoa niskasta Olen kokeillut neuloja ihossa Kaiken maailman hoitoja Joista ei muuta kuin vaivoja Lääkärit kohottaa kulmia Paremmat huomaa turhautuneena Eivät enää välitä vaikka tarjoavat melkein huumeita Kunhan saisin helpotusta Pää on täynä höttöpilviä Vaikea on silloin keksiä Kuinka selvitä arjen pyörityksestä Muisti usein takkuaa Valuttaa kerma kakkua Vaikken perusta makeasta Ja sitten on vatsakin kuralla Usein saan tuntea Kuinka uisin nokkospuskassa Tai kompuroisin piikkiaidassa Ellen saa kuumasta puukosta Aamuna helppoja vuodessa Saan laskea yhden käden sormilla Joista toimii kunnolla vain pari hassua Joskus helpottaa vaivoja Kun istuu saunan lauteilla Leppoisissa löylyissä Välillä Olo on pian kuin krapulassa Ilman oluen makua Vaiva on korvien välissä sanoo osa kun käyn terveyskeskuksessa Psykiatrilla hoidetaan jo pään vaivoja ei niillä tekemistä fibron vaivoissa Psykiatri silti avuliaana Kulkee tutkimassa vaihtoehtoja Onnea on ymmärrys perheessä Tekee elämästä vähemmän perseestä Ei ainakaan niin syvältä Kuin voisi olla paskemmalla perheellä Töissäkin on ymmärrystä Auttaa myös kun on omaa myllerrystä Oppinut pienin keinoin hallitsemaan Melko hyvin sanoittamaan Vaikkei koskaan kokonaan Ja ootappa vaan Jos sattuu vaikka kuumetta nostamaan Tai mikä pahempaa Vatsatautia sairastamaan Siitä fibro vallan riemastuu Ei ole elämä reilua Täytyy mennä sillä pelillä Mitkä kortit muumilaaksossa intiaanit on kanootissa Soppa kauhassa Haistakoon fibro paskat vaan Minä poika jaksan porskuttaa Vaikka aina vähän vituttaa On elämässäni paljoa iloittavaa Ja Ihan periaattestakaan En voi muuta kuin paskalle nauraa Ja kuunnella Kuinka maailma muutenkin tulessa #runo #fibromyalgia #fibro

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