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4.7.0-nightly.2026-08-14
Former medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. United States.
Former medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. United States.
Hey, fellow ME/CFS patients: get a sleep study! Especially if you, too have hypermobile Ehlers-Danlos as a comorbid condition, which contributes to airway collapse during sleep.
This time, the sleep study caught both obstructive AND central sleep apnea. My oxygen levels were as low as 80% saturation. This is the third sleep study I’ve had since developing ME/CFS…pretty alarming that the previous ones missed this.
https://www.rthm.com/resources/blogs/cpap-sleep-apnea-chronic-illness
Former medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. United States.
Early morning beachcombing in SE Alaska. #Alaska #Crab #Intertidal #Nature #SeaLife
Former medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. United States.
Former medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. United States.
If you’re in the U.S., please consider signing this petition regarding proposed Medicaid work requirements. People with ME/CFS and Long COVID need to be designated as medically frail to be exempted from these work requirements in order to continue to receive benefits. As someone who has moderate ME/CFS, I am homebound and am unable to meet my daily needs without assistance—people who are severe or worse can’t get out of bed. #MECFS @mecfs #LongCovid
Former medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. United States.
Former medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. United States.
Former medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. United States.
Former medical librarian now #Disabled by #MECFS, #Dysautonomia/#hyperPOTS, #MCAS, nonepileptic #Seizures, #HEDS, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (just trying to make “bedridden” and “housebound” sound more exciting). Late-diagnosed #ActuallyAutistic. Social awkwardness is my copilot. United States.