Post #1630116

2026-04-24 04:30 UTC

Short rant and then I will find something to do with myself. We (brother and I, both guardians for Drew) have not been able to talk to a doctor in ICU at all and he’s been there 3 days. In particular, we have asked every single shift for his nurse to leave word for the Neuro Critical Team doctor/s to meet with us or call, and the GI Surgeons too. These people are determining his care and maybe have a plan. The only medical professionals we talked with outside of the nurses were the Dietician prior to IV nutrition being started and I spoke to the nurse installing his PICC line by phone so they had a witnessed approval. I have personally spent a total of 22 hours in his room waiting for doctors to round. Nothing. John has spent 9 hours. Nothing. I am going to go in early tomorrow and sit there. If no one talks to me by 10 am I will definitely request a Social Worker On Call or go further. Btw, supposedly Drew is a little better today and is allowed a few ice chips every hour given by a nurse. But he’s sleeping most of the time. He still has NG tube but ketamine was finally stopped this afternoon.

Replies (8)

@burnitdown@beige.party 2026-04-24 04:32

@cobalt123@beige.party :pandaheart: i don't know what's going on but it sounds heartbreaking.

Open ##2389026
@TheEddieShow@beige.party 2026-04-24 04:35

@cobalt123@beige.party I hate this about hospitals. From my similar experience with Mom, may I recommend speaking with a Charge Nurse (if you haven't) and the hospital's Patient Advocate or Ombuds? Insist. This is arrogance of the worse kind. I wish you and your brother good luck. 🫂

Open ##2389027
@mcnado@mstdn.social 2026-04-24 06:00

@cobalt123@beige.party if you’re in a US hospital, request the patient advocate/patient representative (ask the charge RN for the ICU, they’ll know who you want and usually get you connected quickly). You may also be able to find their info on the hospital website (easiest way is usually to search for “filing a complaint”). The hospital usually wants to steer these conversations in a productive direction, because the alternative is regulatory complaints and lawsuits.

Open ##2389031
@czarbucks@vmst.io 2026-04-24 09:35

@cobalt123@beige.party I'm so sorry to read this, when you are already stressed, and just want to know how he is doing. It's wrong on every level, and I hope you get the information you need today.

Open ##2389032
@Sharonbw@mastodon.online 2026-04-24 11:36

@cobalt123@beige.party Trying to catch a doctor is one of the hardest things about having a loved one in the hospital. I don't understand why the medical profession doesn't prioritize communicating with patients' families. Thank goodness for the nurses who pass on what information they have.

Open ##2389033
@bethroots@mindly.social 2026-04-24 11:45

@cobalt123@beige.party This is awful! I hope that you can get this resolved today.

Open ##2389034
@kateiacy@planetearth.social 2026-04-24 13:18

@cobalt123@beige.party That's awful. Good luck snagging someone this morning.

Open ##2389035
@somcak@beige.party 2026-04-24 13:44

@cobalt123@beige.party WTF?!?! That's awful!! I'm glad you're going today to get a doctor to talk to you.

Open ##2389036