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Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV.
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV.
RE: @patientled@mastodon.social
So grateful to the community’s generosity in sustaining Patient-Led Research Collaborative’s pathbreaking work on Long Covid and related diseases like ME/CFS. It’s such a source of hope to me.
If you’re in a position to continue your support, your donations will be doubled through the end of the year!
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV.
@dancingdogs@forall.social Thank you, yes fine here—hoping you are too! That sample set sounds fun!
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV.
US folks who might be up for helping their friends with #LongCovid!
There’s an Appropriations letter requesting significant funding for LC research (and related diseases like #MECFS and #POTS). Huge opportunity—it’s a key step to getting a line in the FY25 budget. Would you shoot your Senators this email asking them to add their names?
Takes 1 min!
Thank you!! <3
https://actionnetwork.org/letters/long-covid-research-funding-in-the-fy25-budget
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV.
@dancingdogs@forall.social Happy New Year to you! That’s a fantastic book! Have you also read the Emperor of Scent? (I haven’t, yet)
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV.
Today leading advocacy orgs and researchers sent a letter calling on President Biden to include #LongCovid and related diseases like #MECFS, #POTS and #MCAS in the next federal budget.
Now there’s an option for patients and allies to add our names well—super quick way to lend support!
Please sign, please share!
https://patientresearchcovid19.com/advocacy/letter-to-president-biden-fy25-budget/
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV.
Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV.