Post #681466
2026-01-27 11:55 UTC
Replies (20)
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@annecavicchi@mindly.social 2026-03-17 03:01
Triple therapy started mid February (Relugolix that started mid January, added Darolutamide and chemo with Docetaxel). He has tolerated the treatments well and is feeling better than he was. The oncologists are pleased with what they see so far. Two down, four to go. He is having radiation now (between chemotherapy sessions) to deal with one of the spine metastasis). We have some hope now - but what a horrible thing for him to be going through all of this.
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@CdnCurmudgeon@mastodon.social 2026-01-27 12:42
@annecavicchi@mindly.social I was tested every year (PSA) for two decades, but missed a year. Next test showed PSA had skyrocketed. Biopsy showed stage 4 prostate cancer. It happened quickly. Scans, surgery, radiation, hormone therapy followed. Surgeon removed the prostate and some flesh where it had spread, but there are still aftereffects. Good side: I am in Canada, so the cost to me was about $1,000 mostly for hospital parking, travel, and some drugs not fully covered. In the USA I would have died.
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@hbowie@c.im 2026-01-27 13:46
@annecavicchi@mindly.social So sorry to hear that your husband has been diagnosed with prostate cancer. I have a good friend who just had a similar diagnosis, although possibly not so advanced. Doctors had been telling me for years now that I didn't need to have my PSA levels tested regularly but I insisted after my friend's diagnosis. Luckily I seem to be ok so far, but of late doctors seem to have preferred erring on the side of missing something with older males, rather than deal with "false alarms" from a temporary infection. But I think they're now starting to see the errors of their ways.
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@PonderStibbons@mas.to 2026-01-27 14:29
@annecavicchi@mindly.social Sorry to read about your husband. I hope he recovers to remission. Canadian in Australia here. Annual blood test standard here. Elevated PSA got me an MRI; MRI was iffy, so due for a biopsy on February 3rd. We'll see how that pans out, but right now I am pretty happy with Medicare here in Australia.
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@PhilRedbeard@mindly.social 2026-01-27 14:52
@annecavicchi@mindly.social I have no words. I’m so sorry.
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@LaChasseuse@mastodon.scot 2026-01-27 15:05
@annecavicchi@mindly.social My brother has been living with prostate cancer for 20 years. A neighbour who has an extremely stressful job got the diagnosis one year into the job, but has carried on working, and working well, for four years now. Science takes male health problems seriously, unlike female health problems. There are very many "lucky" males with this problem, more than the unlucky ones, and I am crossing my fingers for your soulmate, that he will be amongst the majority. 🙏🏼
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@Beachbum@mastodon.sdf.org 2026-01-27 15:15
@annecavicchi@mindly.social I am so sorry for you and your family. I don’t know if you’re aware they are using mRNA technology to develop treatments for different cancers. You could see if they have done any for prostate cancers or maybe request they research it for your situation https://www.cancer.org/cancer/managing-cancer/treatment-types/immunotherapy/cancer-vaccines/mrna-vaccines.html
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@Chigaze@mstdn.ca 2026-01-27 15:43
@annecavicchi@mindly.social Very sorry to hear about your husband's diagnosis, I know from experience how overwhelming it all is. :( I concur about regular testing. I was fortunate my GP raised getting tested when I was 50 rather then the recommended 55. She went through the issues with early testing (false positives, etc) and I decided to get my PSA checked anyways. Seven months later I was in surgery having my rebellious prostate removed. I definitely recommend anyone with a prostate seriously consider getting tested at 50 (or earlier if you're in high risk group). I also recommend anyone with a prostate get educated about prostate cancer as if you have one and live long enough it's almost guaranteed you will get prostate cancer eventually.
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@aSweetGentleman@mstdn.social 2026-01-27 16:05
@annecavicchi@mindly.social I'm sorry you have to go through this. We've been through the same ordeal with my husband. I wish you both a lot of courage in this difficult time. (Hug offered if welcome)🫂
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@Photo55@mastodon.social 2026-01-27 20:28
@annecavicchi@mindly.social There are some very clever technologies emerging, reprogramming the patient's immune (T) cells against their tumour, worth looking for a trial. It is never wrong to get a PSA check, but it is less than certain what best to do with a lot of the results. There is a large study going on which may help that.
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@greem@cyberplace.social 2026-01-27 23:08
@annecavicchi@mindly.social Hey, I'm Stage 4 too. 20 months since first symptoms, 18 months from formal diagnosis. I'm still here. It's inoperable, it was metastatic, but chemo got rid of the metastases and now I'm on "maintenance". Subsequently found out I also have Lynch Syndrome - genetic aberration making me susceptible to a number of different cancers incl prostate. If you need an ear to bend, hit me up by DM. Happy to talk to you both (I'm in the UK so time difference applies!)
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@airwhale@beige.party 2026-01-28 05:32
@annecavicchi@mindly.social So sorry to hear that, Anne. I do hope the treatment your husband gets will be effective. Sharing my own story in hopes that it will incentivise someone to take action I got my prostate cancer diagnosed at 55 years old through a medical study. It was an opt-in thing and I considered skipping it. Then again, it was just a blood test so my wife insisted. The blood test showed elevated levels of PSA, so a biopsy was scheduled. All 12 samples collected showed active cancer cells. No spreading luckily. Treatment chosen was radiation, preceded by hormones (which, wow…) Just a few weeks back I got my 5 year “all clear” test, and I have recovered fully. So amazing. My wife has an acquaintance who’s husband got his treatment start delayed by a year. She is now a widow. Can’t stop thinking that my wife could also have been a widow today. This is serious stuff. So yeah, guys – get the test done yearly once you pass 50.
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@TheEddieShow@beige.party 2026-03-17 02:54
@annecavicchi@mindly.social Anne, I'm so very sorry you and your husband are facing a grim prognosis. 💜
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@McSquank@zirk.us 2026-03-17 02:55
@annecavicchi@mindly.social big hugs
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@jeridansky@sfba.social 2026-03-17 03:16
@annecavicchi@mindly.social OMG, Anne, I'm just now reading this and I'm so very sorry. But I'm glad to read treatment is going well so far. And thank you for taking the time, amidst everything, to warn others about the importance of testing. You might be saving some stranger's life.
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@tiamat271@mastodon.online 2026-03-17 03:37
@annecavicchi@mindly.social I am so so sorry. Sending you and your husband hugs, love, and hopeful wishes. ❤️
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@CuriousMagpie@beige.party 2026-03-17 03:47
@annecavicchi@mindly.social :bear_hugs:
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@bouriquet@mastodon.social 2026-03-17 03:48
@annecavicchi@mindly.social I might say best of luck to both of you but it takes more than luck. Think positive. Don’t dwell on it all the time. Enjoy the times you have together as much as you can. Celebrate life. Prostate cancer is just one of the many factors that can snuff out our wonderful lives in either minutes or years. Yes, fight it, but also live your lives as if it were not there. It hasn’t won yet. Just my humble opinion, hopefully you are not offended.
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@Parker51@mastodon.world 2026-03-17 04:57
@annecavicchi@mindly.social So sorry to hear it was not picked up on earlier. Sending you strength in these hard times 🍀
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@alexanderdyas@mindly.social 2026-03-17 09:10
@annecavicchi@mindly.social ❤️