Post #2741075

2026-01-27 23:08 UTC

@annecavicchi@mindly.social Hey, I'm Stage 4 too. 20 months since first symptoms, 18 months from formal diagnosis. I'm still here. It's inoperable, it was metastatic, but chemo got rid of the metastases and now I'm on "maintenance". Subsequently found out I also have Lynch Syndrome - genetic aberration making me susceptible to a number of different cancers incl prostate. If you need an ear to bend, hit me up by DM. Happy to talk to you both (I'm in the UK so time difference applies!)

Replies (2)

@greem@cyberplace.social 2026-01-28 00:14

@annecavicchi@mindly.social I should probably say, btw: Symptoms, all of a sudden - blood where it shouldn't be. PSA score: 1206. GP quote: "I'm no oncologist but that looks like advanced metastatic prostate cancer to me" Urologist quote: "Massively enlarged prostate" Oncologist quote: "You're looking at... well... if you're unlucky, 3 to 5 years" So far, I am not unlucky!

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@annecavicchi@mindly.social 2026-01-29 02:06

@greem@cyberplace.social Thank you so much for sharing. I swing back and forth from being hopeful, optimistic, and encouraged to totally fearful that treatment isn't going to work. They started him on the hormones right away and have recommended the triple (triplet) therapy. I know he is nervous about the chemo, but I think this is what he will do. I've tried not to influence his decision as it really is his to make. I just want him to have the best chance, and from what the oncologist tells us, this is it. He is a 'take the dog for long walks, golf 2 - 3 rounds a week' guy. In November, hr hurt his back (herniated disc) and in investigating that, the cancer was discovered. Right now, he can only walk short distances with a cane. 0

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