Replying to
@elisa@dftba.club
@elisa@dftba.club Doordash? 🤔
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Sarah 🍕
@sarahv@dftba.club
NYC resident, disabled pedestrian, live music fanatic, plush jaguar caretaker.
Proud member of Turtle Cult 🐢
Don't be scared off by the post count, most of it's DMs.
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Joined November 18, 2022
Chronic Illness Motto::
"All pain, no gain!"
Posts
(Excuse me: I need to vent) Sometimes you run into someone who really really doesn't get the whole chronic illness thing.
I have been dealing with a "mystery illness" for years (chronic fatigue, chronic body pain, various weird symptoms like brain fog, toe cramps and numbness in my extremities) that my PCP thought was autoimmune but the rheumatologist originally said was too early to diagnose as my symptoms were too vague (as of 2023).
Fast forward to 2026 and my symptoms have progressed (read: worsened) to where my doctor has narrowed things down to maybe 2-3 possibilities and thinks it's most likely rheumatoid arthritis.
So I talked to a family member yesterday who asked why I wasn't feeling well and I explained.
She acted like being diagnosed with RA was such a tragedy, and my symptoms "could be a lot of things," and referred to RA as being "so terrible".
So... you're going to make someone feel horrible about the disease they've just been diagnosed with. And you are trying to sow doubt about the diagnosis the doctor has given them even though you have zero training in medicine.
It felt like she thought the doctor gave me a disease, not a diagnosis, and I should fight back against the "bad" diagnosis so I wouldn't be so sick.
Do supportive families exist or are they a myth?
Replying to
@elisa@dftba.club
@elisa@dftba.club I haven't gotten out of bed yet so the day is a blank slate.
Replying to
@elisa@dftba.club
@elisa@dftba.club Oh that's good. I was gonna be mad if they ate something you really liked!
Replying to
@monstreline@ottawa.place
@monstreline That makes sense. With my headache disorders I am really finicky about glasses and their fit, so once I have a pair working for me they are worth their weight in gold.
Replying to
@monstreline@ottawa.place
@monstreline Do you have really cheap glasses? I value mine so much and they are so hard to replace with ones that really fit well. I take really good care of them. I can't imagine thinking it's NBD to sleep in them...
Replying to
@monstreline@ottawa.place
@monstreline I would be a little concerned about someone who did this a lot. My dad started doing it when he developed Alzheimers. I've had glasses 35 years and never did it once, not while drunk or exhausted or jet lagged or anything... and I've got chronic illness with brain fog and memory issues and migraines and I'm kind of a mess.
Replying to
@poppamunz@dftba.club
@poppamunz@dftba.club Personally planning to throw myself under the grinding gears of "it will get better eventually" 🤷♀️
Replying to
@NerdfighterNichole@dftba.club
@NerdfighterNichole@dftba.club @Willow12@dftba.club Welcome Willow! 👋
Replying to
@NerdfighterNichole@dftba.club
@NerdfighterNichole@dftba.club @Birchbarkbunny@dftba.club Welcome, BBB! 👋
Replying to
@arrobas@dftba.club
@arrobas@dftba.club Changing the release schedule isn't really part of the strike. Just like everyone said not to stop going to movies and don't cancel Netflix and etc. D20 hadn't stopped releasing content. They have ~six months backlog in the can. The strike is that new material isn't being made, that's all. Some companies ran out of new stuff faster than others.
Replying to
@arrobas@dftba.club
@arrobas@dftba.club I think it's a good thing if they are paying staff better, treating writers better, signing good contracts, etc. - why should they be punished for the sins of their competitors? We should reward the ones who are actually doing the good things, instead of saying "well you did everything right, but you get nothing for it and no goodwill, sorry!" This way the writers and actors get to work (they want to work and get paid and eat and pay rent!) and do it ethically.
Replying to
@hankgreen@mas.to
@hankgreen@mas.to Yeah, I threw my back out sitting in a chair last week and I've been about 40% functional ever since. Being in your 40s isn't all it's cracked up to be. 🙄
Replying to
@tomasekeli@snabelen.no
@tomasekeli@snabelen.no @hankgreen@mas.to Right? "I would like to counsel you to make better choices, like I did" is not a BAD thing. Especially when the alternative is apparently 'vice signalling'.