Elektrine
EN
Log in Register
Paige Chat Timeline Communities Gallery Videos Email DNS VPN Uptime Kairo
Back to Timeline
Remote

El: spoons? What spoons?

@El_@kind.social
  • Open on kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans:

Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting.

Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses

Header: Bright blue sky with fluffy white clouds

417 Followers
528 Following
16 Posts
Joined July 08, 2023
Pronouns:
they / them
Blog:
https://oosoom.dreamwidth.org/

Posts

Open post
El_
El: spoons? What spoons? @El_@kind.social · May 07, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social

Vote!

Please. Thank you.

9
1
1
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Apr 22, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social

I downloaded a couple of apps that were recommended on the AuDHD Flourishing podcast episode about alexithymia - Animi, and How We Feel.

I've only tested them briefly, but I'm not sure they'll work for me. Perhaps I'm judging too soon, but...

1/

#Alexithymia

4
1
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Apr 09, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social
Replying to @El_@kind.social
Told my talking therapist today about my rocking chair, and it's now part of one of my action points. When I need to check in with my emotional self, figure out what I'm feeling, and let myself feel my feelings, I'm now to: "Take it to the chair" 🤭 I've preemptively put beside the chair a care basket with handkerchiefs, water, and snacks.
14
2
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Mar 25, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social

UK disabled folk, carers, and other interested parties, there is to be a review of the Personal Independence Payment system, and there is an open call for evidence. The details are on this page:

https://www.gov.uk/government/calls-for-evidence/timms-review-of-personal-independence-payment-call-for-evidence

There is a link towards the bottom of the page to a form for submitting evidence, and an email address for submitting evidence in other formats.

Call for evidence closes 28th May 2026.

#UK #PersonalIndependencePayment #Disability #UKDisability #UKBenefits #DWP #TimmsReview

Timms Review of Personal Independence Payment: call for evidence
GOV.UK

Timms Review of Personal Independence Payment: call for evidence

This call for evidence is being administered by DWP on behalf of the Timms Review steering group and seeks to gather feedback and insight relating to the areas outlined in the Terms of Reference of th

7
0
22
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Mar 12, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social
Replying to @El_@kind.social
A silly pun on the above: The mountain is mist (missed.)
7
0
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Mar 12, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social

The world is grey and stormy.

Fog covers the mountain, like it's gone, like it never was.

I must remember the mountain is there.

It is always there.

It will always be there.

Eventually this storm will pass. The fog will lift. I will see the mountain again.

There may even be a rainbow.

I can't control when the storm will end but I can protect myself when I must go out in it.

And I can keep looking towards that horizon.

The mountain will return.

#Depression #Hope

11
2
4
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Mar 04, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social
Replying to @El_@kind.social
Also, I have 2 weeks left to complete this form and organisations have a month to respond to SARs. So, Spouse is going to have to request an extension on the application time for me. When PIP was stopped last time, it broke me. Why am I putting myself through this again? /rh Please excuse me. I need a break from screen time, and a nap. 4/?
5
2
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Mar 04, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social
Replying to @El_@kind.social
I'm going to have to do Subject Access Requests (SAR) again, for both the GP surgery and the hospital trust, and be firm about it this time, and then find out how to get all that missing information added into my patient file. This is energy that I should be spending on self care, on working on independence, on trying to boost my energy levels. 3/
4
1
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Mar 04, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social
Replying to @El_@kind.social
Among the missing conditions and actions are: • my diagnosed depression and anxiety, • my fatigue diagnosis, • the reason I take anti-vertigo meds, • my repeated attempts to get physio through the surgery, • the results of my eventual self-referral to hospital physiotherapy, • my referral to Occupational Therapy and results of that, • and my Atrial Fibrillation diagnosis and ongoing care plan. No wonder I lost PIP last time. 2/
4
1
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Mar 04, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social
Replying to @El_@kind.social
Last time around - the time when PIP was reviewed - my GP surgery were unable to provide a copy of my file because it is lost. Instead, they printed a patient summary. That had brief mentions of most everything I needed so I went with it, lost PIP and failed the appeal This time, I asked for an up-to-date printed patient summary first. They only printed 6 months, and it is missing a bunch of stuff #PersonalIndependencePayment #PIP #UKBenefits 1/
4
1
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Feb 28, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social

My Personal Independence Payment application form arrived 2 days ago.

Even though I'm the one who started this new application, I've used my (limited) available energy on cleaning instead of opening the envelope.

I don't want to do this but I know I need to do this.

Spouse is on rest days for a couple of days, so he will help. And I've counselling soon, so I can deal with these feelings.

I'm guess I'm sharing this for accountability, and because it's hard and I know so many of you can relate

10
3
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Jan 30, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social

In therapy today I learned about the window of tolerance, and about how a mind that has spent a long time outside that window may struggle to stay within that window.

I have more thoughts on this - and a half-formed analogy involving my inner goblin starting fires - but my brain needs to sleep again so they'll have to wait. I'll add a content warning so I can come back to this at some point.

If you have thoughts on this topic, feel free to comment 💜

9
2
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Jan 13, 2026
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social

Link below references SI, world events.

The AuDHD Flourishing podcast posted an episode titled Surviving Out of Spite, and I found it helpful, so I'm sharing it with all y'all lovely Fedizens in case you or someone you know might find it helpful too.

https://shows.acast.com/audhd/episodes/6961755888da0c07c1c911cc

6
2
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Nov 20, 2025
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social

I think one of our jackdaws has a pet pigeon.

The jackdaw is giving every third or fourth peck from the coconut feeder to a pigeon perched nearby.

7
0
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Oct 09, 2025
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social

@AnAutieAtUni@beige.party

The Occupational Therapist also said they'd follow up in some months to see if there's anything else they could do to support me - such as connecting me with relevant support groups or social groups, or signposting relevant voluntary work. (I miss working.)

And they offered signposting support to Spouse, too, as he is my carer.

2
0
0
0
Open post
El_
El: spoons? What spoons? @El_@kind.social · Oct 09, 2025
El: spoons? What spoons?
@El_@kind.social

:SpoonsOutlined: :neurodivergent: :HeartNonbinary: :BlahajProgPride: :BlahajTrans: Nonbinary transmasc, Autistic with ADHD, Xennial dreamer in South Wales, UK. Easily-distracted crafter, currently mostly resting. Avatar: El, a white person, in the sunshine, wearing a dark grey baseball cap and reflective blue sunglasses Header: Bright blue sky with fluffy white clouds

kind.social

@AnAutieAtUni@beige.party

I can't remember the right words for some today; I'll take photos when I'm able.

• A cage for the toilet. It has arms now. I love it.
• A bath seat that lifts and lowers and that I am looking forward to trying.
• A corner shower stool.
• A "bed lever" raised grab handle that is at the side of the bed and secured under the mattress. I love it.
• A raised kitchen seat with arms so I can sit safely at counter height.
• A commode for the ground floor of our house.

2
0
0
0

Remote instance

kind.social
Open on original server
313k7r1n3
Elektrine

Tor hidden service

elekhj7afj4qnrr4yd3bkzslsyo5jgfxw3orgjkhlcxifueodybyiiad.onion

Platform

  • Email
  • Chat
  • Timeline
  • Communities
  • VPN
  • DNS

Company

  • About
  • Contact
  • FAQ

Legal

  • Terms of Service
  • Privacy Policy
  • Warrant Canary
  • Lite (no JS)
  • VPN Policy
  • Source code

Support

  • support@elektrine.com
  • Report Security Issue
Mail client setup IMAP mail.elektrine.com:993 POP3 mail.elektrine.com:995 SMTP mail.elektrine.com:465
© 2026 Elektrine. All rights reserved. Server: 04:48:51 UTC