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• Post #4461236

  From #MEAction for Severe ME Day (Aug. 8) "Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026" https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026 "#MEAction is proud to share the Severe ME Artists Project 2026! ... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the S...

• Post #4096612

  We took a trip a few weeks ago and one of the gardens we visited had posted this sign. I was very happy to see it! 😁 Source for the sign: https://www.ilrc.org/community-resources/know-your-rights #USPol #Immigration #NoIce #FuckICE #KnowYourRights

• Post #4080660

  Heads up for those brave folks who are trying to download and save information from US government websites - the NIH has announced changes to their websites. No idea whether this means data will be deleted or just rearranged but I thought I'd post about it here. https://www.nih.gov/web-modernization #USPol #NIH #Science #HealthCare #Research #MedMastodon #Resist

• Post #4051861

  Free Geek email: "Free Geek is moving, and that means it's the perfect time to score some amazing deals on technology! Join us for our BIG Tech Sale and shop a wide selection of affordable laptops, desktops, monitors, computer accessories, networking equipment, vintage tech, and more." Saturday, July 25 11:00 AM – 3:00 PM Free Geek location: 1731 SE 10th Ave. Portland, OR #Portland #PDX #Laptop #Computer #Sale #FreeGeek

• Post #3992788

  "‘Not about improving elections’: Oregon secretary of state slams new Trump election threats" https://www.opb.org/article/2026/07/21/oregon-election-threats-trump-tobias-read/ "Secretary of State Tobias Read urged Oregonians to turn their ballots in at dropboxes if they live more than 50 miles from the Portland area." Dropboxes are "an even safer, more reliable way because we don’t have to worry about the post office… That’ll go directly to the elections office."...

• Post #3951239

  "For 15,000 Mainers with ME/CFS, the next step is in Congress’ hands" https://www.pressherald.com/2026/07/19/for-15000-mainers-with-me-cfs-the-next-step-is-in-congress-hands-opinion/ "Myalgic encephalomyelitis/chronic fatigue syndrome is an illness as debilitating as it is overlooked." Article urging Congress to fund the ME/CFS Research Roadmap which was approved by NIH in 2024 but still not funded. @mecfs@fedigroups.social #MEcfs #PwME #Research #NIH #USPol

• Post #3795783

  "Leading OB-GYN society breaks from CDC on recommended vaccines for pregnant women, including COVID-19" https://www.cidrap.umn.edu/influenza-vaccines/leading-ob-gyn-society-breaks-cdc-recommended-vaccines-pregnant-women-including "All pregnant people should get the COVID-19, respiratory syncytial virus (RSV), influenza, and Tdap vaccines..." This is the first time the American College of Obstetricians and Gynecologists has released an immunization schedule independent of t...

• Post #3715745

  RE: https://disabled.social/@tomkindlon/116640578558884764 Quote: "Long COVID did not create medicine’s discomfort with invisible illness. It exposed a preexisting pattern that millions of patients had been navigating for decades. Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), fibromyalgia, dysautonomia, POTS — these conditions share remarkable clinical overlap with Long COVID, and they share something else too: a history of being dismissed, minimized, and inadequately rese...

• Post #3604315

  "Do you like tiny, furry, squeaky animals? Cascades Pika Watch wants your help" https://www.opb.org/article/2026/06/21/cascades-pika-watch-wants-your-help/ "Steider is looking for pikas, mammals with furry, little bodies — about the size of a russet potato — and a call like a squeaky toy. She said it took just one look at a pika in the wild, 'then I became obsessed because they’re so adorable.' ” #Oregon #Washington #PNW #Cascades #Wildlife #Pika

• Post #3368792

  "New state law guarantees a free monthly book for Oregon children under 5" https://www.opb.org/article/2026/06/19/free-books-dolly-parton-oregon/ "Gov. Tina Kotek joined youth advocates and supporters of the Dolly Parton Imagination Library on Thursday to sign the library program into state law." #Oregon #Books #FreeBooks #Bookstodon #Education #Libraries #GoodNews

• Post #3329374

  The US Postal Service (USPS) published a proposed rule to allow the federal government to control who can cast a mail-in or absentee ballot. States would have to send a list of every voter slated to receive a ballot by mail to the USPS. Public comments are now being accepted on this rule. See link for info on how to send an email with your comment. https://5calls.org/issue/usps-mail-voting-rule/ #USPol #USPS #VoteByMail #VoterSuppression #Elections #Resist

• Post #3077983

  My sister sent me a Google link with search results about something we'd discussed. I thanked her, and then suggested using "No AI" DuckDuckGo for searches in future. Then sent her this link: https://noai.duckduckgo.com/ I know there are other search engine options but switching from google.com to this link is fairly painless. Crossing my fingers that this makes an impact and she makes the switch! 🤞 #NoAI #FuckAI #SearchEngine #DuckDuckGo #DeGoogle

• Post #3055249

  "Oregon gets its first California condor visit in 122 years" https://www.opb.org/article/2026/06/02/oregon-first-california-condor-visit-122-years/ "A California condor flew into Oregon last month, becoming the first free-flying condor documented in the state since 1904. Condor B9, a little more than two years old, was released into the wild last year by the Yurok Tribe’s condor restoration program. The tribe has been releasing condors since 2022." #Oregon #Environment #W...

• Post #2557284

  "Federal judge continues to block ICE officers from using tear gas, other munitions outside Portland facility" https://www.opb.org/article/2026/02/17/portland-ice-immigration-oregon-tear-gas-munitions/ "A federal judge has extended a temporary order that limits federal law enforcement officers from using certain kinds of force outside the U.S. Immigration and Customs Enforcement building in Portland." #USPol #Oregon #Portland #PDX #ICE #AbolishICE #ICEout #...

• Post #2467574

  💙 It's May 12th, International ME/CFS Awareness Day 💙 Also called World M.E. Day! 🧵 This thread talks about 4 things: 1. My ME/CFS story (brief) 2. Facts about ME/CFS and Long Covid 3. Helpful resources for patients (and friends/family) 4. Actions you can take to help folks with ME/CFS & Long Covid! Some will be easy things anyone can do! 👍 Other actions (re: #Medicaid) are for US residents only. 1/n @mecfs @longcovid #MEcfs #LongCovid #MillionsMissing #MEAwarenessDa...

• Post #2434739

  "The Oregon Department of Human Services recently evaluated the first phase of a pilot program that gives $1,000 a month to youth experiencing homelessness. So far, the direct cash transfer program is producing promising results, including significant reductions in youth homelessness and improved mental health outcomes for participants. Now, early into its second phase, the program is riding the tailwinds of the first." https://www.opb.org/article/2026/01/12/pilot-program/ #O...

• Post #2334800

  This was reposted by @funcrunch today - worth reading! "Yes, ALL White People" https://funcrunch.medium.com/yes-all-white-people-1f666281b04e #Juneteenth #WhitePrivilege #WhiteSupremacy #WhiteFragility

• Post #2295148

  Another good post from Fred Rossi "The Inventory of Loss What chronic illness takes that no one warns you about" https://substack.com/home/post/p-196221159 "Chronic illness is built on grief. Not as a side effect. Not as something you process once and move past. As a permanent condition layered on top of a physical one." (sorry, it's a substack link) @mecfs #MEcfs #PwME #LongCovid #Grief #Loss #ChronicIllness

• Post #2293605

  "If you are taking seats from black people, which we are entitled to by the constitution of this country, then you are a thief." 💯 Baton Rouge civil rights activist Gary Chambers standing up to the corrupt GOP lawmakers who want to eliminate Louisiana’s majority Black districts. If voting was useless they would not be trying to redistrict to supress the vote! #USPol #Louisiana #Republicans #Elections #VotingRights #Resist

• Post #2283581

  "Realizing that glasses could transform millions of lives, a teacher created an incredibly cheap, durable pair. Now, they’re all over the world." https://reasonstobecheerful.world/the-one-dollar-visionary/ Martin Aufmuth founded GoodVision which "operates in 11 countries, employs around 600 people and is supported by volunteers around the globe. Much of its funding comes from individuals rather than governments." https://goodvisionusa.org/ #GoodNews #Glass...

• Post #2111853

  "Why Native Americans Wear Red and March on May 5th " https://nativenewsonline.net/health/why-native-americans-wear-red-and-march-on-may-5th/ "While many Americans spend May 5 celebrating Cinco de Mayo, a day that commemorates the Mexican army’s unexpected victory over French forces at the Battle of Puebla on May 5, 1862, Native Americans and their allies across Indian Country will spend May 5 wearing red shirts to commemorate Missing and Murdered Indigenous Peoples...

• Post #2058593

  Yet another real headline that feels like it's from the Onion 🙃 #USPol #TaxTheRich #Resist

• Post #1885730

  Solve ME 'Science Spotlight' on recent research: "Systematic Underfunding of Long Covid, ME/CFS, and Other Debilitating Diseases That Disproportionately Affect Women" https://solvecfs.org/solve-science-spotlight-systematic-underfunding-of-long-covid-me-cfs-and-other-debilitating-diseases-that-disproportionately-affect-women/ "Dr. Bonuck found severe underfunding was not only for Long Covid but was generally true for diseases predominantly affecting w...

• Post #1859299

  RE: https://infosec.exchange/@SecureOwl/116404712213309413 This whole thread about deleting user accounts is fascinating! And here's a blog post about it: https://mike-sheward.medium.com/deleteduser-com-a-15-pii-magnet-c4396eb21061 #Infosec #Privacy #Security

• Post #1841262

  Hi folks 👋 A friendly reminder: If your post includes an illustration, please credit the artist! When there's no credit I have to guess whether it's AI generated. That means I might just mute / block to avoid accidentally spreading AI images. I'm only a small account but this will reduce boosts & interaction. Others may be doing the same thing & just not telling you. So please, credit the artist! And don't use AI generated images! #NoAI #AIH...

• Post #1587802

  David Tuller has done so much good work to educate people about ME/CFS - please consider donating to support him! (only if you are able, of course) Read more here: https://crowdfund.berkeley.edu/project/49720 You can read his "Trial by Error" posts (which go all the way back to his criticism of the PACE Trial) on the virology blog here: https://virology.ws/david-tuller-posts/ @mecfs #MEcfs #PwME #DavidTuller #Fundraising #PACETrial

• Post #1514403

  Do you want to help prioritize ME/CFS research studies? Then this survey is for you! Open Medicine Foundation (OMF) has a new clinical trials program, CTN Lite, and they want your input. "CTN Lite Patient & Caregiver Survey: Shaping the Priorities of OMF's Clinical Trials Network" https://docs.google.com/forms/d/e/1FAIpQLSeTmvjcIAM9xWEIvJXuBx_L99wmBHqwYuJ2xOwjQOtGkZl8Zw/viewform ME/CFS patients (regardless of trigger) & caregivers can take this surve...

• Post #1458262

  Hi Oregonians👋 Are you ready for the May primary? Election day: May 19 Voter registration deadline: April 28 Check your registration or change your party here: https://secure.sos.state.or.us/orestar/vr/showVoterSearch.do Ballots automatically mailed to registered voters staring April 29 If you won't be home you can fill out an absentee form with an alternate address: https://sos.oregon.gov/elections/Documents/SEL111.pdf More info: https://www.opb.org/elections-2026/ https://w...

• Post #1427945

  This looks like fun! New York City has a jingle contest for their free child care expansion to include 2-year-olds ("2-K"). Cardi B is one of the judges: https://www.youtube.com/watch?v=ygV693-o93Y Submit jingles here: https://www.nyc.gov/content/jingle/pages/ Only NYC residents can submit entries. Final deadline is May 1, 11:59 pm. #NYC #NewYorkCity #ChildCare #Contest #Music #Jingle

• Post #1357099

  "A new program unites West Coast readers for stories of Japanese American incarceration" https://www.opb.org/article/2026/04/11/one-book-one-coast-japanese-american-incarceration/ Libraries across Washington, Oregon and California have selected George Takei’s (@georgetakei ) graphic memoir "They Called Us Enemy" for the "One Book, One Coast" program. I've read this book - highly recommended! 😁 (edited to correct typos) @bookstod...