Post #2467574
2026-05-12 16:20 UTC
💙 It's May 12th, International ME/CFS Awareness Day 💙
Also called World M.E. Day!
🧵 This thread talks about 4 things:
1. My ME/CFS story (brief)
2. Facts about ME/CFS and Long Covid
3. Helpful resources for patients (and friends/family)
4. Actions you can take to help folks with ME/CFS & Long Covid!
Some will be easy things anyone can do! 👍
Other actions (re: #Medicaid) are for US residents only.
1/n
@mecfs @longcovid
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
Replies (1)
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@ahimsa_pdx@disabled.social 2026-05-12 16:30
I'll start by explaining that ME/CFS (name used by most groups in the USA) stands for "myalgic encephalomyelitis / chronic fatigue syndrome" Here are two links with an overview of ME/CFS 1) "What is ME?" from #MEAction https://www.meaction.net/what-is-me 2) "Introduction to ME/CFS" from the Science for ME forum https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527 Many folks w/ Long Covid have similar symptoms, some meet the ME/CFS diagnostic criteria 2/n @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #MillionsMissing #MEAwarenessDay