Post #2607282
2026-05-12 16:30 UTC
I'll start by explaining that ME/CFS (name used by most groups in the USA) stands for "myalgic encephalomyelitis / chronic fatigue syndrome"
Here are two links with an overview of ME/CFS
1) "What is ME?" from #MEAction
https://www.meaction.net/what-is-me
2) "Introduction to ME/CFS" from the Science for ME forum
https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527
Many folks w/ Long Covid have similar symptoms, some meet the ME/CFS diagnostic criteria
2/n
@mecfs@fedigroups.social @longcovid@fedigroups.social
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay
Replies (1)
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@ahimsa_pdx@disabled.social 2026-05-12 16:33
My story: I caught an unknown virus in Dec 1989. I thought I'd recovered then new symptoms started in Jan. Got worse & took my first medical leave in March 1990. Went to dozens of doctors. Finally got a diagnosis in 1995. I kept working, taking medical leaves as needed, but finally got too sick to work at all in 2000. Pushing myself all those years led to a permanent worsening of my condition! Not a good idea! 😔 3/n @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #MillionsMissing #MEAwarenessDay