Post #2607283
2026-05-12 16:33 UTC
My story:
I caught an unknown virus in Dec 1989. I thought I'd recovered then new symptoms started in Jan. Got worse & took my first medical leave in March 1990.
Went to dozens of doctors. Finally got a diagnosis in 1995. I kept working, taking medical leaves as needed, but finally got too sick to work at all in 2000.
Pushing myself all those years led to a permanent worsening of my condition!
Not a good idea! 😔
3/n
@mecfs@fedigroups.social @longcovid@fedigroups.social
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay
Replies (1)
-
@ahimsa_pdx@disabled.social 2026-05-12 16:35
If you learn nothing else from my thread today, please remember this: 🚨 Exercise is NOT recommended for people with ME/CFS! Any exertion, mental or physical, is not good for people who have post-exertional malaise (PEM), sometimes called post-exertional symptom exacerbation (PESE) This includes a significant portion of people with Long Covid. Video with more info: https://www.youtube.com/watch?v=wxSwYUennBA 4/n @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay #PEM #PESE