Post #2607284
2026-05-12 16:35 UTC
If you learn nothing else from my thread today, please remember this:
🚨 Exercise is NOT recommended for people with ME/CFS!
Any exertion, mental or physical, is not good for people who have post-exertional malaise (PEM), sometimes called post-exertional symptom exacerbation (PESE)
This includes a significant portion of people with Long Covid.
Video with more info:
https://www.youtube.com/watch?v=wxSwYUennBA
4/n
@mecfs@fedigroups.social @longcovid@fedigroups.social
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay #PEM #PESE
Replies (1)
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@ahimsa_pdx@disabled.social 2026-05-12 16:49
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do. With severe ME/CFS the person is mostly housebound or completely bedbound. Anil van der Zee, a former professional dancer who now has severe ME, made this video: https://www.youtube.com/watch?v=XhrAhGkrGuQ Read the YouTube summary for more details 5/n @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis