Post #2607285
2026-05-12 16:49 UTC
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
@mecfs@fedigroups.social @longcovid@fedigroups.social
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
Replies (1)
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@ahimsa_pdx@disabled.social 2026-05-12 16:50
Another ME/CFS fact: It can be triggered by COVID infection. Not all Long Covid cases meet ME/CFS diagnosis but many do. For more info see this Bateman Horne Center blog post: COVID-19 Triggers ME/CFS https://batemanhornecenter.org/covid-19-triggers-me-cfs/ "… among participants infected with SARS-CoV-2, the incidence of ME/CFS—defined using the Institute of Medicine (IOM) diagnostic criteria—was 15 times *higher* than pre-pandemic rates." 6/n @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #COVID-19 #CovidIsNotOver #MillionsMissing