Post #2607292
2026-05-12 21:56 UTC
Next I'll list some of the ME/CFS groups which have resources for patients and clinicians.
I'll start with the Bateman Horne Center since I just mentioned them. They have online support group meetings twice a month.
They also have regular "Coffee" with a Clinician sessions where they talk about different ME/CFS issues.
Event calendar:
https://batemanhornecenter.org/events/
Home page:
https://batemanhornecenter.org/
12/n
@mecfs@fedigroups.social @longcovid@fedigroups.social
#MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Replies (1)
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@ahimsa_pdx@disabled.social 2026-05-12 22:08
Another ME/CFS group is #MEAction. They've done great advocacy work over the years, including this protest in 2023. They put 300 cots on the lawn at the Washington Monument. People with ME/CFS or Long Covid sent in pillowcases with personalized messages - you can see some of the pillows in this video. Video from the event: https://www.youtube.com/watch?v=FULqhB--k7k Website: https://storyofmillionsmissing.org/dc-protest/ This event got good press coverage. 13/n @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay