Post #2607293
2026-05-12 22:08 UTC
Another ME/CFS group is #MEAction. They've done great advocacy work over the years, including this protest in 2023. They put 300 cots on the lawn at the Washington Monument.
People with ME/CFS or Long Covid sent in pillowcases with personalized messages - you can see some of the pillows in this video.
Video from the event:
https://www.youtube.com/watch?v=FULqhB--k7k
Website:
https://storyofmillionsmissing.org/dc-protest/
This event got good press coverage.
13/n
@mecfs@fedigroups.social @longcovid@fedigroups.social
#MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Replies (1)
-
@ahimsa_pdx@disabled.social 2026-05-12 22:16
Another ME/CFS research & advocacy group is Solve M.E. https://solvecfs.org/ They hold Advocacy Week every year, meeting with government representatives to lobby for legislation that will help ME/CFS and Long Covid (research funding and other asks). They also run the Ramsay Research Grant Program - since 2016, 37 studies have been supported by Ramsay Grants. https://solvecfs.org/research/ramsay-research-grants/ 14/n @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay #MedMastodon #SolveME