Post #2607288
2026-05-12 17:09 UTC
What does #MillionsMissing mean?
Even mild cases of ME/CFS cause significant loss. So people with ME/CFS are "missing" from work, socializing, exercise, etc.
Moderate cases cause more loss so that people can rarely leave the house.
People with severe cases are in bed, rarely able to intereact with anyone.
As ME/CFS gets worse a person's life shrinks more and more.
The attached comic is by Kornelia Paulsen.
8/n
@mecfs@fedigroups.social @longcovid@fedigroups.social
#MEcfs #LongCovid #SevereME #MEAwarenessDay #WorldMEDay
Replies (1)
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@ahimsa_pdx@disabled.social 2026-05-12 17:19
OK, I'm gonna take a rest break! I'm trying to avoid PEM (post-exertional malaise), aka PESE (post-exertional symptom exacerbation) Pacing is hard! It often fails due to some unplanned exertion which can't be avoided. And sometimes adrenaline takes over when I should be resting. In short, it's easy to do too much and crash. Fact sheet about PEM: https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-606969 I'll be back later today! 😁 9/n @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay