Post #2607289
2026-05-12 17:19 UTC
OK, I'm gonna take a rest break!
I'm trying to avoid PEM (post-exertional malaise), aka PESE (post-exertional symptom exacerbation)
Pacing is hard! It often fails due to some unplanned exertion which can't be avoided. And sometimes adrenaline takes over when I should be resting.
In short, it's easy to do too much and crash. Fact sheet about PEM:
https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-606969
I'll be back later today! 😁
9/n
@mecfs@fedigroups.social @longcovid@fedigroups.social
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
Replies (2)
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@ahimsa_pdx@disabled.social 2026-05-12 21:44
I'm back! 😁 Next I'll share some resources. I'll start by talking about Orthostatic Intolerance (OI). This is when folks get symptoms when in an upright posture, most often from standing, but also when sitting upright. This condition is common in both ME/CFS and Long Covid. Sadly, many doctors don't know about OI even though it's an optional diagnostic criteria for ME/CFS. https://www.cdc.gov/me-cfs/pdfs/toolkit/What-are-MECFS-Symptoms_508.pdf 10/n @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia
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@alex@godforsaken.website 2026-05-12 21:00
@ahimsa_pdx@disabled.social thanks for this great thread!