Post #2607287
2026-05-12 16:59 UTC
Another fact: ME/CFS research has been badly underfunded for years!
In a recent study that looked at research funding with respect to disease burden, ME/CFS was "the most underfunded disease, receiving less than 1% of its expected funding"
Article from Solve ME:
https://solvecfs.org/solve-science-spotlight-systematic-underfunding-of-long-covid-me-cfs-and-other-debilitating-diseases-that-disproportionately-affect-women/
"… the NIH must do a better job at funding severely debilitating diseases that disproportionately affect women more than men"
7/n
@mecfs@fedigroups.social @longcovid@fedigroups.social
#MEcfs #LongCovid #MedMastodon #Research #Women
Replies (1)
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@ahimsa_pdx@disabled.social 2026-05-12 17:09
What does #MillionsMissing mean? Even mild cases of ME/CFS cause significant loss. So people with ME/CFS are "missing" from work, socializing, exercise, etc. Moderate cases cause more loss so that people can rarely leave the house. People with severe cases are in bed, rarely able to intereact with anyone. As ME/CFS gets worse a person's life shrinks more and more. The attached comic is by Kornelia Paulsen. 8/n @mecfs@fedigroups.social @longcovid@fedigroups.social #MEcfs #LongCovid #SevereME #MEAwarenessDay #WorldMEDay