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@tomkindlon@disabled.social

2026-10-05 17:33 UTC

I was one of a number of patient scientists and advocates who was interviewed for this sympathetic, open access paper "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis" https://www.sciencedirect.com/science/article/pii/S003936812600110X?via%3Dihub #MEcfs #PwME #epatient #epatients #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs@fedigroups.social

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