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  Therapy via Messaging https://chroniclivingtherapy.com/insights-text-based-therapy/ Screenshot from latest edition of the Chronic Living Therapy email bulletin #MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness @mecfs@fedigroups.social @longcovid@fedigroups.social #POTS @pots@fedigroups.social

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  🧵 ME Research UK We are deeply appreciative that the community has shared their experiences with us. Those detailing the devastation of cognitive dysfunction in ME/CFS are both moving and profoundly informative. https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/ #MEcfs #PwME #CFS #BrainFog @mecfs@fedigroups.social 1/

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  News Release 2-Sep-2026 Scientists uncover shared biology behind profound fatigue in five major illnesses https://www.eurekalert.org/news-releases/1142275 Paper: https://link.springer.com/article/10.1186/s12967-026-08874-9 UK Times article (paywalled) https://www.thetimes.com/uk/healthcare/article/me-long-covid-chronic-fatigue-illnesses-x6rm6w5wf #MEcfs #LongCovid #PwME #CFS @mecfs@fedigroups.social @longcovid@fedigroups.social 1/

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  “The Relentless Work of Being Sick” “A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.” https://www.motherjones.com/media/2026/09/rogers-sick-work-duke-press-qa-interview-chronic-illness/ #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs@fedigroups.social #spoonie

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  “French state health insurance updates classification of chronic fatigue [syndrome]” “Illness is no longer classified as psychological” https://www.connexionfrance.com/news/french-state-health-insurance-updates-classification-of-chronic-fatigue/809609 #MEcfs #CFS #PwME @mecfs@fedigroups.social

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  Todd Davenport PhD’s thread on ME/CFS vs Long Covid https://threadreaderapp.com/thread/2091621187394871762.html #MEcfs #LongCovid #PwME @mecfs@fedigroups.social @longcovid@fedigroups.social

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  Using advanced MRI techniques, ME Research UK-funded researchers at Griffith University have detected subtle alterations in brain tissue microstructure in ME/CFS & long COVID, supporting the idea that the illnesses share underlying neurological features https://bit.ly/4i8mYn9 #MEcfs #LongCovid #CFS #PwME @mecfs@fedigroups.social @longcovid@fedigroups.social

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  🧵 ME Research UK: Careers, relationships, family life, hobbies, basic tasks – PEM can tear through it all. The sheer symptom burden and ripple effects can impact mental health. We urge anyone in distress to consider reaching out to appropriate organisations e.g. Mind (https://mind.org.uk) #MEcfs #PwME #CFS @mecfs@fedigroups.social 1/

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  From the Netherlands Wearable Heart Rate Variability Monitoring, Autonomic Dysfunction and Post-exertional Malaise in Long COVID: An Observational Study https://link.springer.com/article/10.1007/s40279-026-02487-4 Screenshot from latest Science for ME weekly update @longcovid@fedigroups.social #LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #HRV #MEcfs #PwME #CFS #ME #MyalgicE @mecfs@fedigroups.social

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  From Germany 🇩🇪 Cerebral gray matter volumes in long-term post-COVID patients are associated with peripheral kynurenine pathway metabolites and the severity of depressive symptoms https://www.sciencedirect.com/science/article/abs/pii/S0889159126006665 Screenshot from Science for ME weekly update #LongCovid #COVIDBrain #NeuroPASC #postcovid #PASC #PwLC #postcovid19 #PostCovidSyndrome @longcovid@fedigroups.social

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  From the US 🇺🇸 Plasma Cytokine and Caspase-1p20 Profiles in Pre-Pandemic and Long COVID-Associated Postural Orthostatic Tachycardia Syndrome https://www.mdpi.com/2227-9059/14/7/1605 Screenshot from Science for ME weekly update #LongCovid #POTS @longcovid@fedigroups.social @pots@fedigroups.social

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  Rob Wüst, corresponding author of the new paper: "Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest" https://www.nature.com/articles/s41467-026-75725-y Link to his full post https://www.linkedin.com/posts/rob-w%C3%BCst-74b13431_skeletal-muscle-properties-in-long-covid-share-7487754143374184449-tcqs/ #MEcfs #LongCovid @mecfs@fedigroups.social @longcovid@fedigroups.social

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  Great to have this research with such a useful control group: Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest https://www.nature.com/articles/s41467-026-75725-y #MEcfs #LongCovid @mecfs@fedigroups.social @longcovid@fedigroups.social

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  "Glandular fever*’s not just the ‘kissing disease’...The risk of chronic fatigue [syndrome] means the ‘kissing disease’ should not be downplayed. Experts say there can be long-term consequences" https://www.theaustralian.com.au/health/medical/glandular-fevers-not-just-the-kissing-disease-as-kaylee-mckeown-found-out/news-story/c97eaf0b87503ffc9db4a4abe0aeee6d?amp Archive https://archive.is/4Tf0p *aka Mono #MEcfs #PwME #CFS #ME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs...

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  From Prof Chris Ponting on Bsky: UK people with Long Covid or ME/CFS: please consider helping the HERITAGE project. They need to recruit 1,000 people who have not accessed an NHS specialist service within the last 3 years. https://heritage.leeds.ac.uk/join/ #mecfs #longcovid @mecfs@fedigroups.social @longcovid@fedigroups.social

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  Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024) https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full #MEcfs #CFS #PwME #SevereME #SevereMECFS #SevereCFS #VerySevereME @mecfs@fedigroups.social

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  From Italy 🇮🇹 Vagal cholinergic denervation of the gastric mucosa in Long-COVID-19: in vivo evidence of structural autonomic dysfunction https://www.ijidonline.com/article/S1201-9712(26)00608-9/abstract Screenshot from latest Science for ME weekly update Hashtags: @longcovid@fedigroups.social #LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers

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  ME Research UK: A study exploring experiences of pacing with a heart rate monitor for people with ME/CFS has been published in the Journal "Fatigue: Biomedicine, Health & Behavior". Find out what the research team learned here: https://tinyurl.com/phymsee4 #mecfs #pwme @mecfs@fedigroups.social

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  New research from sympathetic & knowledgeable Physios for ME team et al. Experiences of pacing with a heart rate monitor for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Free fulltext: https://www.tandfonline.com/doi/full/10.1080/21641846.2026.2681411 #MEcfs #PwME #ME #MyalgicE @mecfs@fedigroups.social

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  Study finds melatonin may ease chronic pain Melatonin shows promise as low-cost pain relief option for musculoskeletal pain. https://www.sydney.edu.au/news-opinion/news/2026/07/01/study-finds-melatonin-may-ease-chronic-pain.html Free full text: https://journals.lww.com/pain/fulltext/9900/efficacy_and_effectiveness_of_melatonin_for_the.1225.aspx #ChronicPain #Sleep #Melatonin

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  NIH R3 Seminar: RECOVER clinical trial results and the pursuit of Long COVID treatments Tuesday, July 14, 12:00–1:30 pm ET Website https://recovercovid.org/r3-seminar-series Registration https://rtiorg.zoom.us/webinar/register/WN_wT-ZiFBHS2CqPBYEkcBwKw#/registration #LongCovid #PASC @longcovid@fedigroups.social

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  Biomarkers of post-acute infection syndrome: a systematic literature review https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2026.1741761/full "Overall, the total risk of bias was frequently classified as high, whereas only a limited number of studies demonstrated a low or moderate overall risk of bias” #LongCovid #mecfs #cfs @mecfs@fedigroups.social @longcovid@fedigroups.social

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  From the Netherlands 🇳🇱 Workforce exit and work productivity loss in adults with and without post-COVID-19 condition: the PRIME post-COVID cohort study https://www.ijidonline.com/article/S1201-9712(26)00548-5/abstract Summary article: https://www.cidrap.umn.edu/covid-19/workers-long-covid-more-likely-leave-jobs-lose-productivity Screenshot from @s4me@universeodon.com weekly update Hashtags: @longcovid@fedigroups.social #LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC...

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  The Irish ME Trust organised a webinar on disability and carer payments in Ireland. Recording: https://youtu.be/y0ST_NreH8I Slides: https://1drv.ms/p/c/94454629db95df81/IQAr_iArcGVGRasX28RXs0neAcuhHj90wY4Sn_fXmQrbPvU?e=Ea5hLu My updated notes after they were proofread by somebody (file also includes all slides) https://1drv.ms/b/c/94454629db95df81/IQC6O8ZIzpiaQ6a-OSgEIJmCAYuOUAN7dDfsxhjzou5QFc0?e=ktErgx #MEcfs #PwME #LongCovid #POTS @mecfs@fedigroups.social @longcovid@fedigroups.social @pots...

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  “The Best ME/CFS and Long COVID Treatment Guides in the U.S.: A Round-Up for Patients, Caregivers, and Clinicians” (8-minute read) https://www.caregiverwisdom.net/post/best-me-cfs-and-long-covid-treatment-guides-for-patients-caregivers-and-clinicians #LongCovid #MEcfs #pwme #cfs @longcovid@fedigroups.social @mecfs@fedigroups.social

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  From Germany 🇩🇪 Evaluation of an Integrated Multidisciplinary Care Model for [ME/CFS]: A Prospective, Open-label, ...study https://papers.ssrn.com/sol3/papers.cfm?abstract_id=6989698 "Post-rehabilitation Bell Disability Scale scores decreased [i.e. worsened] In 42/94 (45%) and increased in only 13/94 (14%) patients" #MEcfs #PwME #ME #MyalgicE @mecfs@fedigroups.social

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  🧵 Another excellent blog by Fred Rossi who is well worth following "The Patient Who Isn’t Supposed to Exist" https://darthfoo.substack.com/p/the-patient-who-isnt-supposed-to Nominally on the recent, controversial WIRED article but the points are pretty general #LongCovid #MEcfs #PostExertionalMalaise #PEM #PwME #ME #MyalgicE @mecfs@fedigroups.social @longcovid@fedigroups.social 1/

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  NIH press release: "Immune system may attack nervous system in some Long COVID patients" https://www.nih.gov/news-events/nih-research-matters/immune-system-may-attack-nervous-system-some-long-covid-patients Paper: A causal link between autoantibodies and neurological symptoms in long COVID https://pubmed.ncbi.nlm.nih.gov/42208499/ Hashtags: @longcovid@fedigroups.social #LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #...

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  ME Research UK: Orexin is a chemical messenger produced in the brain. Disruptions in the orexin system produce symptoms that overlap with long COVID and ME/CFS. A review discusses whether it is feasible that disruptions relating to orexin could be linked to long COVID. https://tinyurl.com/5b34px25 #mecfs #longcovid @mecfs@fedigroups.social @longcovid@fedigroups.social

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  I like many other people thought this blog post was very good "Why I Can’t Just Meet You for Dinner" https://substack.com/home/post/p-178293036 Screenshot from AMMES May 2026 Newsletter #MEcfs @longcovid@fedigroups.social #LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #PEM #PostExertionalMalaise #PwME #ME #MyalgicE @mecfs@fedigroups.social