Post #595229
2025-08-19 08:29 UTC
Today I have a more serious topic than usual, please consider reposting for reach:
My wife and I are urgently looking for a specialist in neuropediatrics or a similar field for our autistic child with a diagnosed, but not further specified, movement disorder (myoclonus and/or spasms) to finally find a cause and, above all, an effective therapy. The symptoms are bothering our son ever since he’s born, now for more than nine years, seriously affecting his sleep. The usual processes and medical contact points have failed us unfortunately and he seems stuck in this condition.
We’re based in Berlin, Germany but really any contact with a specialist who would be willing to take on this case we’d be grateful for!
To reach use you can DM me or contact us via Email at unclear.condition@gmail.com
Replies (4)
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@adhdeanasl@beige.party 2025-08-19 12:28
@joern https://www.uab.edu/medicine/peds/neurology
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@volkerdobler@muenchen.social 2025-08-19 13:54
@joern you might have googled it already, but in Munich we do have such a clinic https://www.muenchen-klinik.de/krankenhaus/schwabing/kinderkliniken/kinderheilkunde-jugendmedizin/spezialgebiete-kinder-klinik/kinderneurologie-neuropaediatrie/
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@P__X@mastodon.social 2025-08-21 12:49
@joern I'd try Charité: https://neuropaediatrie.charite.de/ueber_die_klinik/team
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@ExpatRepeat@zeroes.ca 2025-08-22 05:35
@joern following. We have a similar situation, and have not been satisfied with the care we've received here in Alberta, Canada. And now our daughter seems to have developed a new type of seizures.