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@KatyElphinstone@mas.to

Post #3424454

2026-06-27 08:11 UTC

In the UK, 89-97% of autistic adults aged 40+ may be undiagnosed. That's a whole generation of people who've been blamed for traits they naturally had that went unnamed. 😢 #LateDiagnosedAutistic #Autism #ActuallyAutistic #Neurodivergent

Replies (2)

  • @bongmaster@hol.ogra.ph 2026-06-28 05:28

    @KatyElphinstone@mas.to I'm 48 and got diagnosed ADHD last year

    Open ##3441516

  • @gatesvp@mstdn.ca 2026-06-28 10:08

    @KatyElphinstone@mas.to A couple of years back, The Economist magazine did a deep dive on ADHD. They dove into difficult questions around diagnosis and measurement and the responses were quite disappointing. For example, different countries each had their own estimates for the percentage of the population that had ADHD. In part because each of them had different diagnostic criteria, so a UK human may qualify as ADHD in their country, but not in America. And part of that was political, the diagnosis wasn't just a statement of fact, it carried a measure of state support and needed to conform to state norms as well. When pressed about getting a "true count" of ADHD people, a diagnosing physician just balked. If the true percentage of ADHD people was over 10%, they simply didn't have the diagnostic capacity to handle that. ASD is in a similar spot. If "prevalence" is over 10%, we literally can't diagnose everybody.

    Open ##3446160