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@NilaJones@zeroes.ca

Post #2515665

2026-05-11 02:10 UTC

@aredridel@kolektiva.social The best response I ever got was when a doctor asked me to rate my pain 1-10 and I bust out laughing I had to explain, we were just talking about the scale on the internet the other day, and how it doesn't make any sense without referents It was one of those rare moments where you can see a doctor actually focus and be present, for a few seconds - Anyway, how am I supposed to rate pain that prevents me from doing 99% of my previously normal activities, and has been ongoing daily for decades? Am I supposed to change how I define normal activities? This is what I mean when I say the whole concept is stupid, for chronic pain I am not super distracted. I am not unable to stop screaming (yes, I have experienced that kind of pain too). I just can't do any of my normal things If I did 5% of my normal stuff, then yeah, I probably would not be able to stop screaming But that's not socially acceptable, so I just don't do the stuff

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