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@beandreams@friendhole.social

Post #2172481

2026-05-07 00:58 UTC

gosh i love occupational therapists. i'm at a webinar about pacing through summertime, and this OT just shared a "success story" from a client who got a banner for a party they hosted. instead of saying "happy birthday" the banner said "please leave by 9pm" #ChronicIllness #LongCovid #MECFS

Replies (4)

  • This is the same OT who apologized for not being able to put someone in a coma to reset their pain responses. A queen. https://friendhole.social/@beandreams/115342121533268421

    Open ##2271948

  • @dillyd@turtleisland.social 2026-05-07 01:02

    @beandreams@friendhole.social I need that banner. I would hang it permanently.

    Open ##2271950

  • @FiddleSix@zeroes.ca 2026-05-07 01:18

    @beandreams@friendhole.social I have a friend who's an OT, and she is so good at figuring things out! It was great to get input from her both for my mom in her dementia years, and for my husband after his strokes.

    Open ##2271954

  • @anne_twain@theblower.au 2026-05-07 12:38

    @beandreams@friendhole.social You can pay a social price for that, though. People can interpret your self-protective behaviour as anti-social, they may decide you don't like them, are angry or impatient. Even if you tell them you have a chronic illness, they don't have the experience to be able to connect your actions to your illness. So going home early might be "going off in a huff". Sitting quietly might be "a bad mood" and so on.

    Open ##2271958