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• Post #4504277

  I am boycotting The Guardian until the latest poorly written utterly skewed article about #pwME #pwLC is either retracted or amended. I have had enough and this was the last straw.  No longer subscribing or supporting nor will I share anything they do. Their track record has been the most appalling of the mainstream papers. Not good enough for a so called progressive publication to behave this way and get away with shoddy work If you want to join in please use hashtag #MEBoycottTheGuardian

• Post #4504276

  Has this been shared on here yet? If not, boost boost boost! This is the definitive journalistic article from one of our best #pwME #pwLC allies covering what fatigue doesn't even begin to cover what is going on. "[PEM is] the annihilation of possibility" Free to read here: https://archive.li/yFpFc

• Post #4504275

  Had a useful discussion with friends at the weekend on FB who don't have LC/ME about challenging underlying/unconscious ableist assumptions. As I seem to have got their attention, I am asking them to reflect to uncover these basic truths: #pwME #pwLC #LongCovid #MECFS #ChronicIllness #ChallengingAbleism #Friendship #CommunitySupport

• Post #4504274

  Full article from The Times NHS has been told to stop dismissing and stigmatising patients with myalgic encephalomyelitis. DHSC plan for ME open for consultation https://archive.li/2023.08.09-064549/https://www.thetimes.co.uk/article/me-chronic-fatigue-syndrome-nhs-funding-research-disorder-uk-2023-smr6qbbl7

• Post #4504273

  Brain fog down, everything else up = new and very sarcastic mini-roll post to channel my pain. Featuring the usual shoehorned analogies between living with M.E. and inept government. https://writingandme.com/2023/08/16/mini-roll-pem-plans-and-the-cut-and-paste-press/ #pwME #pwLC #MyalgicEncephalomyelitis #LongCovid #MECFS #Politics #UKPolitics #Community

• Post #4504272

  This started as a mini-roll post and ended up as a call to action for #MEAllies. Based on FB interactions with non pwME friends this week. Why #pwME #pwLC can't do this on our own. Why need help, helpfully. 5-8 min read https://writingandme.com/2023/09/01/sink-or-swim-how-to-help-people-with-m-e-helpfully/

• Post #4504271

  Why #pwME #pwLC need help to be heard & create the change we need. And why it's definitely not lack of will or skill. https://writingandme.com/2023/09/01/sink-or-swim-how-to-help-people-with-m-e-helpfully/

• Post #4504270

  Insomnia + chilling statements about being immunocompromised = new poem! 👇

• Post #4504269

  Can I ask a favour? IF you want to help people with M.E, Long Covid & other conditions that make them vulnerable to infection, what would really make a difference is if you could *please* wear a mask in any healthcare settings. Even if doesn't seem necessary for you, or people in your life, it's essential for others around you who you might not know or who you might interact with. By doing this small thing you show you support vulnerable people & you will model...

• Post #4504268

  New blog post/poem-prose/lament: Ignoring Long Covid will be an global act of self-harm Fair warning: Not funny, nor fun nor uplifting, but does contain a glimmer of hope. May be triggering https://writingandme.com/2023/09/13/my-historical-record/ #pwME #pwLC #LongCovid #MECFS

• Post #4504267

  BPS/FND lot have been at it again briefing useful idiot churnalists eager to cut and paste some press releases to minimise LC and M.E. Have had more than enough of this, so have written a robust response to anyone who comes up with this nonsense. Will be using this as a time saver in the future. https://writingandme.com/2023/09/25/to-all-fnd-bps-opinion-piece-generators/ #pwME #pwLC #medicalgaslighting #MECFS