ImmedicableME
ImmedicableME@mastodon.online
<p>Former medical librarian now <a href="https://mastodon.online/tags/Disabled" class="mention hashtag" rel="tag">#<span>Disabled</span></a> by <a href="https://mastodon.online/tags/MECFS" class="mention hashtag" rel="tag">#<span>MECFS</span></a>, <a href="https://mastodon.online/tags/Dysautonomia" class="mention hashtag" rel="tag">#<span>Dysautonomia</span></a>/#hyperPOTS, <a href="https://mastodon.online/tags/MCAS" class="mention hashtag" rel="tag">#<span>MCAS</span></a>, nonepileptic <a href="https://mastodon.online/tags/Seizures" class="mention hashtag" rel="tag">#<span>Seizures</span></a>, <a href="https://mastodon.online/tags/HEDS" class="mention hashtag" rel="tag">#<span>HEDS</span></a>, and more. Really, really overeducated for my current career as a couch surfer and bed hopper (ju
Posts
-
Post #2781881
Happy #Caturday from Basil
-
Post #2781880
Early morning beachcombing in SE Alaska. #Alaska #Crab #Intertidal #Nature #SeaLife
-
Post #2781879
Hey, fellow ME/CFS patients: get a sleep study! Especially if you, too have hypermobile Ehlers-Danlos as a comorbid condition, which contributes to airway collapse during sleep. This time, the sleep study caught both obstructive AND central sleep apnea. My oxygen levels were as low as 80% saturation. This is the third sleep study I’ve had since developing ME/CFS…pretty alarming that the previous ones missed this. #MECFS @mecfs https://www.rthm.com/resources/blogs/cpap-sleep-apnea-chronic-i...
-
Post #2511504
If you’re in the U.S., please consider signing this petition regarding proposed Medicaid work requirements. People with ME/CFS and Long COVID need to be designated as medically frail to be exempted from these work requirements in order to continue to receive benefits. As someone who has moderate ME/CFS, I am homebound and am unable to meet my daily needs without assistance—people who are severe or worse can’t get out of bed. #MECFS @mecfs #LongCovid https://actionnetwork.org/petitions/freakin-...