Post #4397560

She has an ultra-rare disease. Now this N.S. girl will be one of the first to test a possible cure Harper Tanton will be the fourth child in the world to participate in the clinical trial for kids who have CTNNB1 syndrome. She largely depends on a wheelchair and has developmental and speech delays. https://www.cbc.ca/news/canada/nova-scotia/harper-tanton-taking-part-in-ctnnb1-syndrome-trial-9.7292541?cmp=rss