Post #3866892

So uh, my sister got diagnosed with POTs and when she'd explain her symptoms to me I thought it was normal since I always feel that way. She had a massive flare up that led to her diagnosis. Since I've been having so many injuries and looking into EDS... I discovered that POTs and EDS are often seen together, and that there is a high likelihood I have those genetic conditions. The real nail in the coffin is that the rare medical condition I have in pregnancy is linked to EDS, showing a 60% increased likelihood of having it. So here I am scratching my head like "what the fuck why haven't any medical provider ever mentioned the possibility to me?!" Anyways it's literally a simple blood test to get the ball rolling for diagnosis. There isn't really treatment, I mean I just will live my life. But it will be good to know since apparently new studies came out in 2026 about those with EDS and anthesesia, and how they require more medication since their body processes it faster. Interesting.. makes me wonder if the C-section I had where the anthesesia didn't "take" properly and I was freaking out in the OR due to terrible burning pain... Is an indicator of this or just an isolated incident... Looking back on my life so much makes sense. Feeling faint, tunnel vision, I thought that was due to disordered eating or stress. The fact that I bruise so terribly and have fragile skin, I always ask to get my iron checked and it's always fine.. random blood vessels bursting... Extreme sensitivity to anything on my skin... The body pain I've just associated with tiredness or pregnancy. So many little red flags are popping up now and I'm like :bocchi_ahhhh: I was laughing last night reading documentation and it's kind of neat to put a name to something. Or maybe not and I'm just extremely unlucky