Post #2564141
2026-04-06 15:28 UTC
@ryancheley@mastodon.social
First things first - #FuckCancer
Second - Lots of your post was familiar
Third - Two suggestions I wish I had heard early on - 1/get your tumor(s) biopsied if you go in for surgery. 2/get a ctDNA (circulating DNA), blood test done immediately. Both will tell you if you have any tumor mutations or 'results of unknown significance' (a mutation they are not tracking yet). I have both. This would have altered my approach to my CRC and armed my docs with a lot more info. Then after treatment continue to get ctDNA tests done for a couple years to make sure you really-really got the disease. They are cheap to do and most insurance covers them these days (not so much in 2020 when I was dx-ed for CRC).
Happy to share more on my journey and learnings if you are interested.
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